Democratizing Native Hawaiian and Pacific Islander Data

Examining Community Accessibility of Data for Health and the Social Drivers of Health

Bibliographic Data

ID11036079
AuthorsB N Morey (0000-0002-2637-1227, St. Joseph Health System), Corina S Penaia (Brittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. ‘Alisi Tulua, is with Asian American Futures, Irvine, CA.), Alisi Tulua, Richard Chang (0000-0002-8265-5064, St. Joseph Health System), Richard C Chang (Brittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. ‘Alisi Tulua, is with Asian American Futures, Irvine, CA.), Roselyn Tanghal (Brittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. ‘Alisi Tulua, is with Asian American Futures, Irvine, CA.), Jacqueline H Tran (Brittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. ‘Alisi Tulua, is with Asian American Futures, Irvine, CA.), Jacqueline Tran (0000-0003-3447-7272, St. Joseph Health System), Ninez A Ponce (0000-0001-5151-6718, Brittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. ‘Alisi Tulua, is with Asian American Futures, Irvine, CA.)
Year2024
Volume114
IssueS1
PagesS103-S111
Publication date2024-01-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueAmerican Journal of Public Health (JOURNAL)
Journal identifiersISSN: 0090-0036 • E-ISSN: 1541-0048
PublisherAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2023.307503
PMID38207270
OpenAlexW4390732305
LanguageEN
Citations received2
References cited17

Making data accessible to communities is essential for developing community-driven solutions to address health inequities. In this analytic essay, we highlight the importance of democratizing data for Native Hawaiians and Pacific Islanders (NHPIs)—diverse populations that historically have had little access to their data—in the context of achieving equity in health and the social drivers of health. We provide a framework for evaluating community accessibility of data, which includes concepts of data availability, salience, cost, and report back. We apply the framework to evaluate community accessibility of NHPI data from 29 federal data sources. In addition, we provide results from a survey of NHPI-serving community organizations in California conducted from December 2021 to February 2022 to assess community data needs. Findings reveal federal gaps in data accessibility, as well as NHPI community organizational needs for increased data accessibility, data saliency, and technical capacity. Furthermore, organization leads expressed concerns about data privacy, security, and misuse. We provide recommendations for data custodians to improve accessibility of timely, accurate, and robust data to support NHPI communities. (Am J Public Health. 2024;114(S1):S103–S111. https://doi.org/10.2105/AJPH.2023.307503 )

Community health · Context (archaeology) · Custodians · Environmental health · Geography · Health equity · Pacific islanders · Political science · Population · Public health · Public relations · Salience (neuroscience) · Survey data collection · Food Security and Health in Diverse Populations · Health disparities and outcomes · Medicine · Psychology · Public Health Policies and Education

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