Mortality Among Adults With Intellectual Disability in England

Comparisons With the General Population

Bibliographic Data

ID11038596
AuthorsFay J Hosking (0000-0002-1101-039X, At the time of the study, Fay J. Hosking, Iain M. Carey, Sunil M. Shah, Tess Harris, Stephen DeWilde, and Derek G. Cook were with the Population Health Research Institute, St George’s University of London, London, England. Carole Beighton was with the Faculty of Heath Social Care and Education, Kingston and St George’s, University of London.), Iain M Carey (0000-0003-1099-8460, At the time of the study, Fay J. Hosking, Iain M. Carey, Sunil M. Shah, Tess Harris, Stephen DeWilde, and Derek G. Cook were with the Population Health Research Institute, St George’s University of London, London, England. Carole Beighton was with the Faculty of Heath Social Care and Education, Kingston and St George’s, University of London., corresponding author), Sunil M Shah (At the time of the study, Fay J. Hosking, Iain M. Carey, Sunil M. Shah, Tess Harris, Stephen DeWilde, and Derek G. Cook were with the Population Health Research Institute, St George’s University of London, London, England. Carole Beighton was with the Faculty of Heath Social Care and Education, Kingston and St George’s, University of London.), SUNIL SHAH (0000-0002-5373-5305, St George's, University of London), Tess Harris (0000-0002-8671-1553, At the time of the study, Fay J. Hosking, Iain M. Carey, Sunil M. Shah, Tess Harris, Stephen DeWilde, and Derek G. Cook were with the Population Health Research Institute, St George’s University of London, London, England. Carole Beighton was with the Faculty of Heath Social Care and Education, Kingston and St George’s, University of London.), Stephen DeWilde (0000-0002-4238-4474, At the time of the study, Fay J. Hosking, Iain M. Carey, Sunil M. Shah, Tess Harris, Stephen DeWilde, and Derek G. Cook were with the Population Health Research Institute, St George’s University of London, London, England. Carole Beighton was with the Faculty of Heath Social Care and Education, Kingston and St George’s, University of London.), Carole Beighton (0000-0003-0625-1700, At the time of the study, Fay J. Hosking, Iain M. Carey, Sunil M. Shah, Tess Harris, Stephen DeWilde, and Derek G. Cook were with the Population Health Research Institute, St George’s University of London, London, England. Carole Beighton was with the Faculty of Heath Social Care and Education, Kingston and St George’s, University of London.), Derek G Cook (0000-0002-9723-5759, At the time of the study, Fay J. Hosking, Iain M. Carey, Sunil M. Shah, Tess Harris, Stephen DeWilde, and Derek G. Cook were with the Population Health Research Institute, St George’s University of London, London, England. Carole Beighton was with the Faculty of Heath Social Care and Education, Kingston and St George’s, University of London.)
Year2016
Volume106
Issue8
Pages1483-1490
Publication date2016-08-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueAmerican Journal of Public Health (JOURNAL)
Journal identifiersISSN: 0090-0036 • E-ISSN: 1541-0048
PublisherAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2016.303240
PMID27310347
OpenAlexW2442756892
LanguageEN
Citations received9
References cited20

Objectives. To describe mortality among adults with intellectual disability in England in comparison with the general population. Methods. We conducted a cohort study from 2009 to 2013 using data from 343 general practices. Adults with intellectual disability (n = 16 666; 656 deaths) were compared with age-, gender-, and practice-matched controls (n = 113 562; 1358 deaths). Results. Adults with intellectual disability had higher mortality rates than controls (hazard ratio [HR] = 3.6; 95% confidence interval [CI] = 3.3, 3.9). This risk remained high after adjustment for comorbidity, smoking, and deprivation (HR = 3.1; 95% CI = 2.7, 3.4); it was even higher among adults with intellectual disability and Down syndrome or epilepsy. A total of 37.0% of all deaths among adults with intellectual disability were classified as being amenable to health care intervention, compared with 22.5% in the general population (HR = 5.9; 95% CI = 5.1, 6.8). Conclusions. Mortality among adults with intellectual disability is markedly elevated in comparison with the general population, with more than a third of deaths potentially amenable to health care interventions. This mortality disparity suggests the need to improve access to, and quality of, health care among people with intellectual disability

Cohort · Cohort study · Comorbidity · Confidence interval · Environmental health · Hazard ratio · Intellectual disability · Population · Psychiatry · Psychological intervention · Demography · Disability Rights and Representation · Down syndrome and intellectual disability research · Genetics and Neurodevelopmental Disorders · Internal Medicine · Medicine · Gerontology