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The End of Written Informed Consent for HIV Testing

Not With a Bang but a Whimper

Bibliographic Data

ID11040191
AuthorsRonald Bayer (Ronald Bayer is with the Center for the History and Ethics of Public Health, Mailman School of Public Health, Columbia University, New York, NY. Morgan Philbin is with the Department of Sociomedical Sciences, Mailman School of Public Health. Robert H. Remien is with the HIV Center for Clinical and Behavioral Studies, New York State Psychiatric Institute, Columba University Medical Center, New York.), Morgan M Philbin (0000-0001-7608-7921, New York Psychoanalytic Society and Institute), Morgan Philbin (Ronald Bayer is with the Center for the History and Ethics of Public Health, Mailman School of Public Health, Columbia University, New York, NY. Morgan Philbin is with the Department of Sociomedical Sciences, Mailman School of Public Health. Robert H. Remien is with the HIV Center for Clinical and Behavioral Studies, New York State Psychiatric Institute, Columba University Medical Center, New York.), Robert H Remien (0000-0002-3963-3273, Ronald Bayer is with the Center for the History and Ethics of Public Health, Mailman School of Public Health, Columbia University, New York, NY. Morgan Philbin is with the Department of Sociomedical Sciences, Mailman School of Public Health. Robert H. Remien is with the HIV Center for Clinical and Behavioral Studies, New York State Psychiatric Institute, Columba University Medical Center, New York.)
Year2017
Volume107
Issue8
Pages1259-1265
Publication date2017-08-01
Open AccessNo
TypeARTICLE
VenueAmerican Journal of Public Health (JOURNAL)
Journal identifiersISSN: 0090-0036 • E-ISSN: 1541-0048
PublisherAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2017.303819
PMID28640673
OpenAlexW2679234078
LanguageEN
Citations received4

In 2014, only two states in the United States still mandated specific written informed consent for HIV testing and, after years of controversy, New York ended this requirement, leaving only Nebraska. New York’s shift to opt-out testing meant that a singular feature of what had characterized the exceptionalism surrounding HIV testing was eliminated. We trace the history of debates on written informed consent nationally and in New York State. Over the years of dispute from when HIV testing was initiated in 1985 to 2014, the evidence about the benefits and burdens of written informed consent changed. Just as important was the transformation of the political configuration of HIV advocacy and funding, both nationwide and in New York State. What had for years been the subject of furious debate over what a rational and ethical screening policy required came to an end without the slightest public protest. (Am J Public Health. 2017;107:1259–1265. doi:10.2105/AJPH.2017.303819)

Alternative medicine · Family medicine · Human immunodeficiency virus (HIV) · Informed consent · Political science · Politics · Public health · State (computer science) · Ethics in Clinical Research · HIV, Drug Use, Sexual Risk · HIV/AIDS Research and Interventions · Law · Medicine · Nursing · Gerontology

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Citations per year0.57
Citation span2019 - 2022 (4)
Highly citedNo

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