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Capturing lifestyle changes and emotional experiences while having a compromised immune system during the Covid‐19 pandemic

A photo‐elicitation study

Bibliographic Data

ID11043865
AuthorsLaura Sinko (0000-0002-6021-4727, Department of Nursing Temple University College of Public Health Philadelphia Pennsylvania USA, corresponding author), Samira Rajabi (0000-0001-7929-4133, Department of Media Studies, College of Media Communication and Information University of Colorado Boulder Boulder Colorado USA), Alyssa Sinko (0000-0001-9991-9700, Sidney Kimmel Medical College Thomas Jefferson University Philadelphia Pennsylvania USA), Raina M Merchant (0000-0002-9801-6881, Department of Emergency Medicine, Perelman School of Medicine University of Pennsylvania Philadelphia Pennsylvania USA)
Year2022
Volume50
Issue5
Pages2411-2430
Publication date2022-07-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueJournal of Community Psychology (JOURNAL)
Journal identifiersISSN: 0090-4392 • E-ISSN: 1520-6629
PublisherWiley (PUBLISHER • GB)
DOI10.1002/jcop.22784
PMID34990025
OpenAlexW4206788694
LanguageEN
Citations received3
References cited27

This study aimed to describe lifestyle and emotional changes individuals with compromised immune systems experienced during the early months of the coronavirus disease 2019 pandemic. A survey was distributed to online support organizations for those with chronic illness and a national research volunteer registry from April to June 2020. Participants were asked to document their experiences via three photo‐elicitation prompts, followed by reflection and Likert scale questions. Forty‐seven individuals responded with 282 photos submitted. Lifestyle changes noted include shifts in wellness strategies, health management, routine, stressors, and time perception. Participants described significant distress stemming from deteriorating mental health, safety fears, isolation, health management, and longing. Wellness strategies documented included finding comfort, connection, and escape, managing uncertainty, maintaining physical health, and building resilience. These findings can increase a sense of community for immunocompromised individuals who are struggling in isolation and enhance knowledge of their day‐to‐day health needs during times of increased stress and health risk

Disease · Distress · Emotional distress · Emotional support · Isolation (microbiology) · Likert scale · Mental health · Social isolation · Cancer survivorship and care · COVID-19 and Mental Health · Health, psychology, and well-being

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Unique citing works3
Citations per year1
Citation span2023 - 2026 (4)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 3

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