Perspectives of parents and tutors on a self‐management program for parents/guardians of children with long‐term and life‐limiting conditions
“A Life Raft We Can Sail Along With”
Bibliographic Data
| ID | 11043907 |
|---|---|
| Authors | Julie Barlow (Coventry University, corresponding author), Laura Swaby, Andy Turner (0000-0001-6538-4242, Coventry University), Andrew Turner (0000-0003-0505-4561) |
| Year | 2008 |
| Volume | 36 |
| Issue | 7 |
| Pages | 871-884 |
| Publication date | 2008-09-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Community Psychology (JOURNAL) |
| Journal identifiers | ISSN: 0090-4392 • E-ISSN: 1520-6629 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1002/jcop.20258 |
| OpenAlex | W2009914416 |
| Language | EN |
| Citations received | 1 |
| References cited | 28 |
The lay‐led, community‐based Supporting Parents Programme (SPP) aims to assist parents caring for children with long‐term or life‐limiting conditions through support and cognitive behavioral techniques. The value of the SPP from the perspectives of parent participants and tutors was examined in focus groups and telephone interviews. Data were analyzed using framework analysis. Parents perceived a commonality of emotions and practical issues, valued meeting similar others, felt less isolated, more positive, motivated, and more calm; some had found the “real me again.” Changes were attributed to techniques learned. Parents were anxious of being cast adrift at the end of SPP. Tutors needed more support and additional training around child protection and confidentiality. © 2008 Wiley Periodicals, Inc
Computer security · Confidentiality · Developmental psychology · Focus group · Limiting · Medical education · Sociology · Term (time) · Value (mathematics) · Childhood Cancer Survivors' Quality of Life · Computer Science · Engineering · Family and Patient Care in Intensive Care Units · Family Support in Illness · Medicine · Psychology · Social Psychology
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Self-management approaches for people with chronic conditions
Caregiving process and caregiver burden
Qualitative data analysis for applied policy research
Social learning theory
Caregiving
Self-help groups as mutual support
The effectiveness and cost effectiveness of a national lay-led self care support programme for patients with long-term conditions
Evidence Suggesting That a Chronic Disease Self-Management Program Can Improve Health Status While Reducing Hospitalization
Accommodative Coping and Well-Being of Midlife Parents of Children With Mental Health Problems or Developmental Disabilities
Helping others helps oneself
Positive Psychology Progress
What Good Are Positive Emotions
Self-management Training for People with Chronic Disease
| Citations per year | 0.08 |
|---|---|
| Citation span | 2014 - 2014 (1) |
| Highly cited | No |