Two-level multi-methodological evaluation of a new complex primary support programme for stroke care-givers in Germany
Bibliographic Data
| ID | 11199529 |
|---|---|
| Authors | Theresia Krieger (0000-0002-7414-7318, Maastricht University, corresponding author), Frans Feron (0000-0002-9633-7921, Catholic University of Applied Sciences), Elisabeth Dorant (0000-0002-7376-4779, Catholic University of Applied Sciences) |
| Year | 2022 |
| Volume | 42 |
| Issue | 1 |
| Pages | 1-31 |
| Publication date | 2022-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Ageing and Society (JOURNAL) |
| Journal identifiers | ISSN: 0144-686X • E-ISSN: 1469-1779 |
| Publisher | Cambridge University Press (CUP) (PUBLISHER) |
| DOI | 10.1017/s0144686x20000665 |
| OpenAlex | W3035703082 |
| Language | EN |
| Citations received | 1 |
| References cited | 56 |
Family care-givers are the backbone of the long-term support system for care receivers at home. Care for stroke survivors after rehabilitation primarily rests on the shoulders of family members, often of older age themselves. We report the outcomes of a new complex support programme, the Care-givers’ Guide, on both individual and system levels. Psycho-social support and personalised information were the main ingredients of this intervention. A two-level multi-methodological approach was needed, with two concurrent interconnected studies. Family care-givers reflected on outcomes at an individual level in a quant-QUAL study with a pre–post quantitative questionnaire and a post-intervention qualitative semi-structured interview. Practitioners participated in a QUAL-QUAL study ex post interview, reflecting on the outcomes on the care-givers and on their own stroke care system. Individual family care-givers showed an increase in health literacy and level of psycho-social health. Qualitative analysis revealed improvement in knowledge, capability to act and individual empowerment; and stabilisation of sense of certainty, life balance and emotional wellbeing. Practitioners observed an optimisation of the stroke support system by improving professionals’ daily routine, augmenting the institutional support offer, securing the quality of patient care and increasing inter-institutional co-operation attempts. Positive outcomes of the support programme were observed on both evaluation levels: family care-givers showed improved health literacy and psycho-social health, whereas the professionals noticed an optimisation of the support system
Empowerment · Family support · Health care · Intervention (counseling) · Physical therapy · Qualitative research · Social support · Clinical practice guidelines implementation · Dementia and Cognitive Impairment Research · Medicine · Nursing · Patient Satisfaction in Healthcare · Psychology · Rehabilitation · Social Psychology
Content analysis
Qualitative Content Analysis in Practice
Qualitative evaluation and research methods
Caregiver Burden
Designing and evaluating complex interventions to improve health care
Methodological challenges in qualitative content analysis
Achieving Research Impact Through Co‐creation in Community‐Based Health Services
Designing A Mixed Methods Study In Primary Care
The qualitative content analysis process
Consolidated criteria for reporting qualitative research (Coreq)
Developing and evaluating complex interventions
The Causal Pathways Linking Health Literacy to Health Outcomes
Research to practice
An integrative review on family caregivers’ involvement in care of home‐dwelling elderly
Support for family caregivers
Health literacy of caregivers of adult care recipients
Challenges to evaluating complex interventions
Critical Analysis of Strategies for Determining Rigor in Qualitative Inquiry
Making Room for Qualitatively-Driven Mixed-Method Research
Three Approaches to Qualitative Content Analysis
Using Mixed-Methods Sequential Explanatory Design
Ethics, Reflexivity, and "Ethically Important Moments" in Research
| Unique citing works | 1 |
|---|---|
| Citations per year | 0.5 |
| Citation span | 2024 - 2024 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 1 |