Daring to tell
The importance of telling others about a diagnosis of dementia
Bibliographic Data
| ID | 11200911 |
|---|---|
| Authors | DOT WEAKS (University of Edinburgh, corresponding author), Heather Wilkinson (0000-0001-8570-3351, University of Edinburgh), John Mcleod (0000-0002-2802-3525, Abertay University) |
| Year | 2015 |
| Volume | 35 |
| Issue | 4 |
| Pages | 765-784 |
| Publication date | 2015-04-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Ageing and Society (JOURNAL) |
| Journal identifiers | ISSN: 0144-686X • E-ISSN: 1469-1779 |
| Publisher | Cambridge University Press (CUP) (PUBLISHER) |
| DOI | 10.1017/s0144686x13001074 |
| OpenAlex | W2163795035 |
| Language | EN |
| Citations received | 3 |
| References cited | 23 |
Learning to live with a diagnosis of dementia is a complex process. Being able to talk about the diagnosis to others represents a major challenge for some people with dementia. This study explores the experiences of people with dementia, and members of their families, around the task of informing others during the six months immediately following their diagnosis of dementia. Five people with dementia living in the community, and their immediate family members, were recruited into an ethnographic study. Data were collected through recorded interviews and participant observation, and were analysed through a grounded theory method within a continuing iterative process. Findings suggest that participants recognised the need to tell others about their diagnosis but these conversations were difficult to initiate and manage, and hindered the processing of emotions. Findings are discussed in relation to implications for practice
Dementia · Developmental psychology · Disease · Ethnography · Grounded theory · Participant observation · Qualitative research · Relation (database) · Social science · Sociology · Task (project management) · Computer Science · Cultural, Psychoanalytic, and Sociopolitical Reflections · Dementia and Cognitive Impairment Research · Education, Healthcare and Sociology Research · Medicine · Psychology
| Citations per year | 0.33 |
|---|---|
| Citation span | 2017 - 2025 (9) |
| Highly cited | No |