A qualitative investigation of the psychosocial services utilised by care-givers of patients with Alzheimer's disease and related dementias in southwestern Uganda
Bibliographic Data
| ID | 11201207 |
|---|---|
| Authors | Catherine Abaasa (0000-0001-6882-1831, Mbarara University of Science and Technology), Celestino Obua (0000-0001-6949-3059, Mbarara University of Science and Technology), Edith K Wakida (0000-0001-6949-8474, Mbarara University of Science and Technology), Godfrey Zari Rukundo (0000-0002-3739-1426, Mbarara University of Science and Technology, corresponding author) |
| Year | 2023 |
| Volume | 43 |
| Issue | 7 |
| Pages | 1603-1616 |
| Publication date | 2023-07-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Ageing and Society (JOURNAL) |
| Journal identifiers | ISSN: 0144-686X • E-ISSN: 1469-1779 |
| Publisher | Cambridge University Press (CUP) (PUBLISHER) |
| DOI | 10.1017/s0144686x21001276 |
| PMID | 37680685 |
| OpenAlex | W3201092876 |
| Language | EN |
| References cited | 34 |
Individuals with Alzheimer's disease and related dementias often require substantial support from other people. Much of the care-giving is from family members who eventually experience physical, emotional and financial stress, depression and fatigue. In Uganda, families are a cornerstone in providing care to individuals with dementia. However, little is known about the psychosocial supports available to the care-givers in their care-giving role. We assessed the psychosocial supports available to care-givers of individuals with Alzheimer's disease and related dementias in southwestern Uganda. We conducted 34 in-depth interviews at three referral hospitals at which care-givers identified by the treating clinicians were approached for informed consent. The interviews were conducted until thematic saturation was reached, and the interviews were translated and transcribed. Thematic content analysis was used to analyse the data. Care-giver supports were structured into two major themes: medical supports utilised and supports beyond the medical care system. Medical supports highlighted information provided by medical professionals. Supports beyond the medical care system included emotional and instrumental supports provided by religious leaders, the local communities and family members. Care-givers for individuals with dementia in southwestern Uganda receive educational support from medical practitioners, and unstructured emotional and instrumental supports from the family and community
Dementia · Disease · Family medicine · Psychiatry · Psychosocial · Qualitative research · Referral · Thematic analysis · Dementia and Cognitive Impairment Research · Family Caregiving in Mental Illness · Intergenerational Family Dynamics and Caregiving · Medicine · Nursing · Psychology · Gerontology
Dementia Caregiver Burden
Psychiatric and Physical Morbidity Effects of Dementia Caregiving
The global prevalence of dementia
Family Caregiving of Persons With Dementia
Caregiver burden for informal caregivers of patients with dementia
The experience of caregivers of people living with serious mental disorders
The epidemiology of dependency among urban-dwelling older people in the Dominican Republic; a cross-sectional survey
Chronic disease prevalence and care among the elderly in urban and rural Beijing, China - a 10/66 Dementia Research Group cross-sectional survey
Using thematic analysis in psychology
When someone becomes old then every part of the body too becomes old
| Highly cited | No |
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