Sharing stories
A meta-ethnographic analysis of 12 autobiographies written by people with dementia between 1989 and 2007
Bibliographic Data
| ID | 11201593 |
|---|---|
| Authors | Sean Page (0000-0001-6799-6592, Greater Manchester Mental Health NHS Foundation Trust, corresponding author), John Keady (0000-0001-8243-6913, Greater Manchester Mental Health NHS Foundation Trust) |
| Year | 2010 |
| Volume | 30 |
| Issue | 3 |
| Pages | 511-526 |
| Publication date | 2010-04-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Ageing and Society (JOURNAL) |
| Journal identifiers | ISSN: 0144-686X • E-ISSN: 1469-1779 |
| Publisher | Cambridge University Press (CUP) (PUBLISHER) |
| DOI | 10.1017/s0144686x09990365 |
| OpenAlex | W2097487449 |
| Language | EN |
| Citations received | 13 |
| References cited | 21 |
People with dementia are finding increasingly creative and diverse ways of making their voice heard in society and one such method is through the publication of autobiographical accounts. Following set inclusion criteria, this meta-ethnographic analysis compares and contrasts the contents of 12 books written by people with dementia and published between 1989 (the year of publication of the first text) and the end of 2007 (the selected cut-off point for inclusion). Of the 12 books, three authors were published twice, five were male, eight were from the United States of America, one was Australian and all nine had a professional background. Eight of the authors had Alzheimer's disease and one had fronto-temporal dementia. The average age of the narrator was 51.5 years (age range 38–61 years). Meta-ethnographic analysis of the 12 books inductively generated five themes that linked each story and these were: (a) awareness of change; (b) experiencing loss; (c) standing up and bearing witness; (d) sustaining continuity; and (e) liberation and death. The importance of reconstructing identity appeared a pivotal process in living with the onset and progression of dementia together with maintaining key social relationships and networks
Aesthetics · Art · Dementia · Disease · Ethnography · Identity (music) · Inclusion (mineral) · Linguistics · Sociology · Witness · Aging and Gerontology Research · Anthropology · Dementia and Cognitive Impairment Research · Gender Studies · History · Medicine · Mental Health and Patient Involvement · Psychology · Gerontology
Annual Bibliography of Works About Life Writing, 2009-2010
Illuminating experiences of grief and loss in people with dementia
Risky and resilient life with dementia
Research Ethics and the Moral Enterprise of Ethnography
Steady and delayed
Kitwood's thought and relational social work
Identity, selfhood and dementia
Understanding the personhood of Deaf people with dementia
Living with uncertainty
Dichotomising dementia
Facilitators and barriers to co‐research by people with dementia and academic researchers
We can't keep going on like this’
Unsolicited Written Narratives as a Methodological Genre in Terminal Illness
Documents of Life 2
For a Sociology of the Body
Global prevalence of dementia
Meta-Ethnography
Qualitative Metasynthesis
How can they tell?' A qualitative study of the views of younger people about their dementia and dementia care services
The Construction and Deconstruction of Self in Alzheimer's Disease
The Body
Speaking of Life
| Unique citing works | 13 |
|---|---|
| Citations per year | 0,81 |
| Citation span | 2010 - 2026 (17) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 12 |