Non-use of community health-care services – an exploratory cross-sectional study among family care-givers for older, home-dwelling persons with dementia

Datos Bibliográficos

ID11202125
AutoresJill-Marit Moholt (0000-0002-8660-1522, UiT The Arctic University of Norway, autor de correspondencia), Oddgeir Friborg (0000-0001-6629-0782, UiT The Arctic University of Norway), Nils Henriksen (0000-0001-7884-7920, UiT The Arctic University of Norway), Torunn Hamran (UiT The Arctic University of Norway), Bodil Hansen Blix (0000-0002-1049-4636, UiT The Arctic University of Norway)
Año2021
Volumen41
Número9
Páginas2074-2098
Fecha de publicación2021-09-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaAgeing and Society (JOURNAL)
Identificadores de la revistaISSN: 0144-686X • E-ISSN: 1469-1779
EditorialCambridge University Press (CUP) (PUBLISHER)
DOI10.1017/s0144686x2000015x
OpenAlexW3010106692
IdiomaEN
Citas recibidas5
Referencias citadas47

Community health-care services for older, home-dwelling persons with dementia tend to be underutilised. Family care-givers provide substantial care, and they often arrange for and co-ordinate health-care services on behalf of persons with dementia. The aim of this study was to examine family care-givers’ knowledge of unused services and their self-reported reasons for non-use of such services. We gathered cross-sectional survey data from 430 family care-givers of older persons with dementia in Northern Norway. Multinomial logistic regression analysis was used to identify predictors of family care-givers’ knowledge of unused services. An open-ended question regarding reasons for non-use of services was analysed by thematic text analysis. Characteristics of family care-givers ( e.g. education level) and factors related to the care-giving circumstances ( e.g. negative impact of care-giving) predicted family care-givers’ knowledge of unused services. Reasons for non-use of services were multifaceted and complex, and were related to attributes of the person with dementia and/or the family care-giver ( e.g. reluctance to use services) and/or the health-care services ( e.g. low quality). Although services were unused, several family care-givers indicated substantial needs for the services. Strategies aimed at addressing the non-use of services should emphasise individuals’ and families’ needs and the adaptation of information about available services and their benefits for both care recipients and family care-givers. A relationship-centred care approach is thus recommended in dementia care

Dementia · Disease · Family medicine · Health care · Multinomial logistic regression · Qualitative research · Thematic analysis · Chronic Disease Management Strategies · Geriatric Care and Nursing Homes · Intergenerational Family Dynamics and Caregiving · Medicine · Nursing · Psychology · Gerontology