"Normal Means Blessing!" Awareness and Acceptance in Mothers of Children with Special Care Needs
A Qualitative Study
Bibliographic Data
| ID | 11215248 |
|---|---|
| Authors | Aylin Kurt (0000-0002-5521-0828, Faculty of Health Sciences, Nursing Department, Child Health and Diseases Nursing, Bartin University, Bartin, Turkey, corresponding author), Emine Güneş Şan (0000-0002-5491-8621, Faculty of Health Sciences, Nursing Department, Child Health and Diseases Nursing, Bartin University, Bartin, Turkey), Fatma Dinç (0000-0003-1451-7441, Faculty of Health Sciences, Nursing Department, Child Health and Diseases Nursing, Bartin University, Bartin, Turkey), İsmail Berat Uzun (0000-0003-0095-0738, Faculty of Health Sciences, Department of Child Development, Bartin University, Bartin, Turkey) |
| Year | 2024 |
| Volume | 50 |
| Issue | 5 |
| Pages | 873-888 |
| Publication date | 2024-09-02 |
| Open Access | No |
| Type | ARTICLE |
| Venue | Journal of Social Service Research (JOURNAL) |
| Journal identifiers | ISSN: 0148-8376 • E-ISSN: 1540-7314 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/01488376.2024.2385470 |
| OpenAlex | W4401134124 |
| Language | EN |
| References cited | 51 |
The objective of this study was to examine the acceptance and awareness of mothers with children with special needs regarding their children's special situation. A qualitative exploratory approach was employed in this study. Between November 2023 and January 2024, in-depth individual interviews were conducted with 22 mothers of children with special needsFour primary themes emerged from the mothers included in the study regarding their acceptance and awareness of their children's special situation: Challenges, Transformation, Adaptation, and Mistakes. The Challenges theme encompasses the child who deviates from expectations, lack of information, stigma, lack of support, burden of care, inadequacy, and guilt. The Transformation theme encompasses the concept of the special child, increased responsibilities, attitude toward the social environment, and normal means of blessing. The Adaptation theme encompasses the sub-themes of treatment and care, family dynamics, spirituality, and social. The Mistakes theme encompasses the sub-themes of dependency on the child, dependency of the child, and allowing secondary gain. The parents demonstrated a willingness to accept and be aware of their children's special condition, which facilitated the process of transformation and adaptation. In order for parents to undergo the transformation process more expeditiously, it is necessary to enhance their acceptance and awareness
Blessing · Psychiatry · Qualitative research · Sociology · Special needs · Family and Disability Support Research · Family Support in Illness · Infant Development and Preterm Care · Medicine · Nursing · Psychology
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Qualitative Rigor or Research Validity in Qualitative Research
Consolidated criteria for reporting qualitative research (Coreq)
Representations
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Doing Phenomenological Research and Writing
Determining Validity in Qualitative Inquiry
Physical and Mental Health of Mothers and Fathers Caring for Children with Special Health Care Needs
| Highly cited | No |
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