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Delivering decision making support to people with cognitive disability — What has been learned from pilot programs in Australia from 2010 to 2015

Bibliographic Data

ID11228401
AuthorsChristine Bigby (0000-0001-7001-8976, Living with Disability Research Centre La Trobe University Bundoora VIC Australia, corresponding author), Jacinta Douglas (0000-0003-0940-6624, Living with Disability Research Centre La Trobe University Bundoora VIC Australia), Terry Carney (0000-0002-3612-5986, Law School University of Sydney Sydney NSW Australia), Shih-Ning Then (0000-0002-8211-1868, Queensland University of Technology), Shih‐Ning Then (Australian Centre for Health Law Research Queensland University of Technology Brisbane QLD Australia), Ilan Wiesel (0000-0002-7244-1775, School of Geography University of Melbourne Bundoora VIC Australia), Elizabeth Smith (0000-0003-3937-1055, Living with Disability Research Centre La Trobe University Bundoora VIC Australia)
Year2017
Volume52
Issue3
Pages222-240
Publication date2017-09-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueAustralian Journal of Social Issues (JOURNAL)
Journal identifiersISSN: 0157-6321 • E-ISSN: 1839-4655
PublisherWiley (PUBLISHER • GB)
DOI10.1002/ajs4.19
OpenAlexW2757632071
LanguageEN
Citations received11
References cited14

The UNCRPD has generated debate about supported decision making as a way to better enable people with cognitive disability to participate in decision making. In Australia, between 2010–2015, a series of projects have piloted various models of delivering decision making support. A critical review was conducted on the program documents and evaluations of these pilot projects. The pilots were small scale, conducted by both statutory and non‐statutory bodies, and adopted similar designs centred on supporting a decision maker/supporter dyad. Primarily, participants were people with mild intellectual disability. Themes included: positive outcomes; uncertain boundaries of decision support; difficulty securing supporters; positive value of program staff and support to supporters; limited experience and low expectations; and varying value of written resources. The lack of depth and rigour of evaluations mean firm conclusions cannot be reached about program logics, costs or outcomes of the pilots. The pilots demonstrate feasibility of providing support for decision making rather than resolving issues involved in delivering support. They suggest that some form of authority may facilitate the role of decision supporters, help to engage others in a person's life, and integrate decision making support across all life domains

Cognition · Decision support system · Dyad · Political science · Project commissioning · Public relations · Publishing · Rigour · Statutory law · Supporter · Value (mathematics · Applied Psychology · Computer Science · Global Health Care Issues · Global Healthcare and Medical Tourism · Health Systems, Economic Evaluations, Quality of Life · Psychology · Social Psychology

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Unique citing works11
Citations per year1,83
Citation span2020 - 2026 (7)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 11

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