Adults With Intellectual Disability Moving out of the Family Home Using the National Disability Insurance Scheme
Family Members' Planning Experiences
Bibliographic Data
| ID | 11229311 |
|---|---|
| Authors | Irene Belperio (0000-0003-2687-2117, Flinders University, corresponding author), Ruth Walker (0000-0002-5936-1068, Flinders University), Christine Bigby (0000-0001-7001-8976, La Trobe University), Ilan Wiesel (0000-0002-7244-1775, The University of Melbourne), F Rillotta (0000-0003-0837-5838, College of Nursing and Health Sciences Flinders University Adelaide South Australia Australia), Claire Hutchinson (0000-0003-4289-8886, Caring Futures Institute, College of Nursing and Health Sciences Flinders University Adelaide South Australia Australia) |
| Year | 2025 |
| Publication date | 2025-11-09 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Australian Journal of Social Issues (JOURNAL) |
| Journal identifiers | ISSN: 0157-6321 • E-ISSN: 1839-4655 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1002/ajs4.70078 |
| OpenAlex | W4416097183 |
| Language | EN |
| References cited | 25 |
For adults with intellectual disability and their families, future planning and moving out of the family home in Australia will increasingly occur within the context of the National Disability Insurance Scheme (NDIS). As a market‐based, individualised funding system its impact on this transition remains largely unknown. This paper reports on a qualitative study involving 17 family members who supported an adult with intellectual disability to move out of the family home using the NDIS. For many families, the NDIS provided increased funding opportunities and greater flexibility in housing and living supports than were previously available. However, they also described how navigating the Scheme and achieving desired housing and living goals had a significant impact on their well‐being. More research is needed to more fully understand the mental and emotional toll of engaging with the NDIS for significant life course transitions specifically. Additionally, while initiatives such as the Australian Government's proposed ‘Navigator’ service demonstrate growing recognition of the need to bolster the quality and availability of formal support for those using the Scheme, our results would indicate that this does not yet go far enough in addressing the complex and sometimes long‐lasting impact of engaging with such complex bureaucratic processes
Bureaucracy · Context (archaeology · Flexibility (engineering · Intellectual disability · Project commissioning · Publishing · Qualitative research · Service (business · Toll · Down syndrome and intellectual disability research · Family and Disability Support Research · Healthcare innovation and challenges
Interpretative phenomenological analysis.
Challenges and adaptations of an intermediary
Parental Experiences of Engaging With the National Disability Insurance Scheme for Their Children
Exploring the wellbeing of Australian families engaging with the National Disability Insurance Scheme in rural and regional areas
Impeded choice and control within the NDIS
Perspectives of the National Disability Insurance Scheme
Balancing stability and change
Administering inequality? The National Disability Insurance Scheme and administrative burdens on individuals
Individual Funding for Disability Support
Experiences of National Disability Insurance Scheme planning from the perspective of adults with intellectual disability
A decade on
The personalisation agenda
Moving on' for Adults With a Learning Disability and Their Families
| Citation velocity | historical |
|---|---|
| Highly cited | No |