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Doing research with intellectually disabled participants

Reflections on the challenges of capacity and consent in socio‐legal research

Bibliographic Data

ID11448680
AuthorsRosie Harding (0000-0002-3063-3525, Birmingham Law School University of Birmingham Edgbaston Birmingham B15 2TT England, corresponding author)
Year2021
Volume48
IssueS1
Publication date2021-12-01
Open AccessYes
TypeARTICLE
VenueJournal of Law and Society (JOURNAL)
Journal identifiersISSN: 0263-323X • E-ISSN: 1467-6478
PublisherWiley (PUBLISHER • GB)
DOI10.1111/jols.12331
OpenAlexW4200141830
LanguageEN

In this article, I reflect on the praxis of doing qualitative interview research involving intellectually disabled people as participants. I explore the ways in which ethical and legal norms work together to shape what is possible in research with intellectually disabled participants. I use stories from the field to explore issues of recruitment and sampling, working with ‘gatekeeper’ organizations, accessible information and informed consent, and data sharing and open access. As these reflections demonstrate, undertaking fieldwork involving intellectually disabled participants presents multiple challenges for socio‐legal researchers. They also show that many of the challenges are surmountable, offering concerns, considerations, and solutions that can, and perhaps should, be considered by all socio‐legal researchers who wish to ensure that all of the voices of society are included and reflected in their research

Alternative medicine · Disabled people · Engineering ethics · Field (mathematics · Informed consent · Legal research · Medical education · Political science · Praxis · Psychiatry · Public relations · Qualitative research · Research ethics · Social science · Sociology · Work (physics · Applied Psychology · Disability Rights and Representation · Engineering · Law · Legal Education and Practice Innovations · Medicine · Psychology · Qualitative Research Methods and Ethics · Social Psychology

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