Doing research with intellectually disabled participants
Reflections on the challenges of capacity and consent in socio‐legal research
Bibliographic Data
| ID | 11448680 |
|---|---|
| Authors | Rosie Harding (0000-0002-3063-3525, Birmingham Law School University of Birmingham Edgbaston Birmingham B15 2TT England, corresponding author) |
| Year | 2021 |
| Volume | 48 |
| Issue | S1 |
| Publication date | 2021-12-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Law and Society (JOURNAL) |
| Journal identifiers | ISSN: 0263-323X • E-ISSN: 1467-6478 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/jols.12331 |
| OpenAlex | W4200141830 |
| Language | EN |
In this article, I reflect on the praxis of doing qualitative interview research involving intellectually disabled people as participants. I explore the ways in which ethical and legal norms work together to shape what is possible in research with intellectually disabled participants. I use stories from the field to explore issues of recruitment and sampling, working with ‘gatekeeper’ organizations, accessible information and informed consent, and data sharing and open access. As these reflections demonstrate, undertaking fieldwork involving intellectually disabled participants presents multiple challenges for socio‐legal researchers. They also show that many of the challenges are surmountable, offering concerns, considerations, and solutions that can, and perhaps should, be considered by all socio‐legal researchers who wish to ensure that all of the voices of society are included and reflected in their research
Alternative medicine · Disabled people · Engineering ethics · Field (mathematics · Informed consent · Legal research · Medical education · Political science · Praxis · Psychiatry · Public relations · Qualitative research · Research ethics · Social science · Sociology · Work (physics · Applied Psychology · Disability Rights and Representation · Engineering · Law · Legal Education and Practice Innovations · Medicine · Psychology · Qualitative Research Methods and Ethics · Social Psychology
| Highly cited | No |
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