Carer stress in Fetal Alcohol Spectrum Disorders
The implications of data from the UK national specialist Fasd clinic for training carers
Bibliographic Data
| ID | 11941235 |
|---|---|
| Authors | Zameer Mohamed (0000-0002-3713-0277, Surrey and Borders Partnership NHS Foundation Trust), Alexandra C S Carlisle (Surrey and Borders Partnership NHS Foundation Trust), Alexandra CS Carlisle (Surrey and Borders Partnership NHS Foundation Trust), Alexandra Livesey (0000-0003-3991-6959, Surrey and Borders Partnership NHS Foundation Trust), Alexandra C Livesey (Surrey and Borders Partnership NHS Foundation Trust), Raja Mukherjee (0000-0002-2171-928X, Surrey and Borders Partnership NHS Foundation Trust, corresponding author), Raja AS Mukherjee (Surrey and Borders Partnership NHS Foundation Trust) |
| Year | 2020 |
| Volume | 44 |
| Issue | 3 |
| Pages | 242-254 |
| Publication date | 2020-09-16 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Adoption & Fostering (JOURNAL) |
| Journal identifiers | ISSN: 0308-5759 • E-ISSN: 1740-469X |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/0308575920945112 |
| OpenAlex | W3088493328 |
| Language | EN |
| Citations received | 4 |
| References cited | 20 |
Medical research literature is increasingly reporting high levels of stress among carers of children with Fetal Alcohol Spectrum Disorders (FASD). However, while there are a growing number of evidence-based innovations around the world for carer stress generally, there are no programmes in the UK for those looking after children with FASD. The aim of this study, therefore, is to provide an up-to-date profile of stress faced by these carers, to explore its sources and suggest directions for service development. Seventy-one carers and their child with FASD participated in a study designed for this purpose. Parental stress levels were assessed using the Parental Stress Index (PSI) and the characteristics of their children – cognition, adaptive behaviour, sensory processing and externalising behaviour function – by a battery of measures. Further correlational and regression analyses were carried out to explore the nature and source of the carer stress identified. When the levels of stress in families was measured, all six Child Domains on the PSI showed results that were above the clinically significant cut-off for high stress, while all seven Parent Domains were below this threshold. Significant associations were found between the PSI and child behaviours, but generally the Parent Domain and Child Behaviours were not correlated. Regression analysis found executive functioning difficulties in children to be the main predictors of carer stress but sensory difficulties were not significant, despite 83% of the children having elevated problems of this kind. Total stress scores among carers of children with FASD were elevated and far exceeded the threshold score on the PSI, suggesting a need for ‘further professional consultation’. Consideration of parental needs and the development of evidenced-based interventions specific for these carers are highlighted as areas for future development
Alcohol · Cognition · Developmental psychology · Fetal alcohol · Fetal Alcohol Spectrum Disorder · Pregnancy · Psychiatry · Stress (linguistics · Clinical Psychology · Gestational Diabetes Research and Management · Homelessness and Social Issues · Medicine · Prenatal Substance Exposure Effects · Psychology
Families with fetal alcohol spectrum disorders
Caregivers' experiences and perceptions of suicidality among their children and youth with fetal alcohol spectrum disorder
The Lived Experiences of Adoptive and Foster Parents of Children With Foetal Alcohol Spectrum Disorder (Fasd)
Trying differently’ towards improving school experiences
| Unique citing works | 4 |
|---|---|
| Citations per year | 0,8 |
| Citation span | 2021 - 2025 (5) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 4 |