Experiences of prognosis disclosure versus nondisclosure among family caregivers of persons with advanced cancer
Bibliographic Data
| ID | 12095035 |
|---|---|
| Authors | Sravannthi Maya (Indian Institute of Technology Hyderabad), Mahati Chittem (0000-0002-8978-3544, Indian Institute of Technology Hyderabad), Shweta Chawak (0000-0001-8732-1357, Jindal School of Psychology and Counselling, O.P. Jindal Global University, Haryana, India), Patricia A Parker (0000-0003-1878-1186, Memorial Sloan Kettering Cancer Center), Smita C Banerjee (0000-0001-5479-5978, Memorial Sloan Kettering Cancer Center, corresponding author) |
| Year | 2023 |
| Volume | 48 |
| Issue | 9 |
| Pages | 905-915 |
| Publication date | 2023-12-20 |
| Open Access | No |
| Type | ARTICLE |
| Venue | Death Studies (JOURNAL) |
| Journal identifiers | ISSN: 0748-1187 • E-ISSN: 1091-7683 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/07481187.2023.2293711 |
| PMID | 38117258 |
| OpenAlex | W4389993081 |
| Language | EN |
| References cited | 22 |
Caregiving in the South Asian context is often assumed by family automatically for the person with cancer (PWC). In this paper, we applied the disclosure decision-making model (DD-MM) to understand the motives behind cancer prognosis disclosure (or not) by caregivers to the PWC. Fifty caregivers participated in semi-structured interviews; and data were analyzed using Framework Approach. For the disclosing caregivers, some of the themes that emerged were consistent with the DD-MM framework while others were not. In particular, the theme "recipient assessment" was part of the DD-MM framework, while others such as unmet communication needs, caregiver self-reflection, and family support were outside of the framework. In contrast, for the non-disclosing caregivers, the reasons for nondisclosure fit very concisely into the DD-MM framework, particularly with information assessment, recipient assessment, and (non) disclosure efficacy. This study has significant implications for development of communication skills trainings around holding family meetings in India
Context (archaeology · Family caregivers · Family medicine · Clinical Psychology · Family and Patient Care in Intensive Care Units · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient-Provider Communication in Healthcare · Psychology
| Highly cited | No |
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