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A thematic analysis of in-hospital end-of-life care experiences of surviving family members

Bibliographic Data

ID12097252
AuthorsShannon K Johnson (0000-0001-8979-9346, Catholic University of America), Shannon Johnson (Catholic University of America), Anne Kelemen (0000-0003-0574-6592, Georgetown University Medical Center, corresponding author), Coleia Grimes (Catholic University of America), Susannah Stein (Children's National), Hunter Groninger (0000-0001-7416-1999, Georgetown University Medical Center)
Year2019
Volume45
Issue6
Pages469-479
Publication date2019-08-09
Open AccessNo
TypeARTICLE
VenueDeath Studies (JOURNAL)
Journal identifiersISSN: 0748-1187 • E-ISSN: 1091-7683
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/07481187.2019.1648341
PMID31397642
OpenAlexW2968136314
LanguageEN
Citations received2
References cited21

While end-of-life care (EoLC) priorities for patients dying in the hospital are well-documented, few data characterize needs and experiences of their family members. We conducted thematic analysis of audio recorded interviews of 18 bereaved family members to elucidate these experiences. Participants' memories were organized into two parent themes: those related to satisfaction with the care received and effective communication; those identifying shortcomings in patient care, hospital-family communication, hospital environment, and care burden on the part of family members. These findings provide insight to enhance services to patients and their families at end-of-life and improve postmortem and bereavement services

End-of-life care · Family medicine · Family member · Health care · Hospital care · Palliative care · Qualitative research · Sociology · Thematic analysis · Family and Patient Care in Intensive Care Units · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology

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    Karen E Steinhauser•JAMA•2000

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    Open Access•Beth L Rodgers, Kathleen V Cowles•Research in Nursing & Health•1993

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Citations per year0.5
Citation span2022 - 2023 (2)
Highly citedNo

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