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The Troubled Dream of Genetic Medicine

Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease

Bibliographic Data

ID12209607
AuthorsJackie Leach Scully (0000-0002-7637-1225, Newcastle University, corresponding author)
Year2007
Volume20
Issue2
Pages402-403
Publication date2007-06-28
Open AccessNo
TypeARTICLE
VenueSocial History of Medicine (JOURNAL)
Journal identifiersISSN: 0951-631X • E-ISSN: 1477-4666
PublisherOxford University Press (OUP) (PUBLISHER)
DOI10.1093/shm/hkm050
OpenAlexW2034966423
LanguageEN
Citations received4

The ‘genetic revolution’ that was supposed to transform medicine over the last quarter century has so far been underwhelming as revolutions go. Promises that killer diseases would be wiped out, defective genes targeted for treatment, and new drugs tailored to individual genetic profiles, have not (yet) been fulfilled. Meanwhile, the field has accumulated a small but not insignificant history of failure and scandals. What has genuinely been transformed are some of the ways we think about human disease and non-disease characteristics. This change is reflected in the recent extensive writing about the potential social implications of the new genetic knowledge; this must indeed be one of the most well scrutinised epistemological shifts in history. But there has been surprisingly little written about genetic disease in its full cultural or historical context, in the world beyond the interaction between patient, clinician and research scientist. It takes the appearance of a book like this to highlight how little we actually know of the ways that societies, and particular cultural or ethnic groups within them, make sense of the phenomenon of hereditary disease

Context (archaeology · Disease · Dream · Environmental ethics · Epistemology · Ethnic group · Pathology · Phenomenon · Psychotherapist · Sociology · Anthropology · Medicine · Psychology · Race, Genetics, and Society · History · Philosophy

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Citations per year0.22
Citation span2008 - 2025 (18)
Highly citedNo

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