Collective Deliberations and Hearts on Fire

Previous research has shown that experiential knowledge plays an important role for service user movements and has also discussed ambiguities in the definition of this type of knowledge. This study contributes to clarifying how experiential knowledge is understood within the service user movement. Through semi-structured interviews, it explores how Swedish mental health service user organisations (MHSUOs) and service user entrepreneurs (SUEs) regard the role of experiential knowledge for their endeavours. The study shows that SUEs and MHSUOs view experiential knowledge as complementary to established medical and expert knowledge. Both groups further reflect on the functions of individual and collective dimensions of experiential knowledge. Emotions are important in conveying experiential knowledge, although emotional commitment can be short-lived. The study discusses challenges for SUEs and MHSUOs in developing strategies to manage risks tied to strategic essentialism, and also in maintaining a critical standpoint towards established service providers

Business · Epistemology · Experiential knowledge · Experiential learning · Knowledge management · Mental health · Pedagogy · Psychotherapist · Service (business · Service provider · Community Development and Social Impact · Computer Science · Management and Organizational Studies · Mental Health and Patient Involvement · Psychology · Marketing

• Defining patient’s experiential knowledge

  Open Access•Arnaud Halloy, Emmanuelle Simon et al.•Sociology of Health & Illness•2023

  Añadir item

• A Market of Lived Experience—User Involvement and the Commodification of Personal Experiences of Mental Illness

  Open Access•Erik Eriksson•International Journal of…•2023

  Añadir item

• Expertise-by-Experience in Child and Family Services

  Open Access•Johanna Kiili, Maritta Itäpuisto•Nordic Journal of Social Research•2022

  Añadir item

• Representing the ‘Voice’ of Patients

  Open Access•Marjaana Jones, Piia Jallinoja et al.•Voluntas Revista Internacional de…•2020

  Añadir item

• The Participation of People in Vulnerable Situations in Interest Organisations

  Open Access•Jan Marius Gathen, Tor Slettebø et al.•Journal of Social Policy•2025

  Añadir item

• What is Qualitative Interviewing?

  Open Access•Rosalind Edwards, Janet Holland•What Is Qualitative Interviewing?•2013

  Añadir item

• The Logic of Connective Action

  Open Access•W L Bennett, Alexandra Segerberg•Logic of Connective Action•2013

  Añadir item

• The snakes and ladders of user involvement

  Open Access•Jonathan Tritter, Jonathan Quetzal Tritter et al.•Health Policy•2006

  Añadir item

• Disability Studies and the Future of Identity Politics

  Open Access•Tobin Siebers•Identity Politics Reconsidered•2006

  Añadir item

• Advocacy for mental health

  Open Access•Michelle Funk, Alberto Minoletti et al.•Health Promotion International•2006

  Añadir item

• Service user involvement, authority and the ‘expert-by-experience’ in mental health

  T Noorani•Journal of Political Power•2013

  Añadir item

• Boycottautismspeaks

  Sarah M Parsloe, Avery E Holton•Information Communication & Society•2018

  Añadir item

• Social Movements and Networks

  Mario Diani, Doug Mcadam•Social movements and networks•2003

  Añadir item

• Assembling dementia care

  Open Access•Tiago Moreira, Órla O’donovan et al.•BioSocieties•2014

  Añadir item

• Evidence-based activism

  Open Access•Vololona Rabeharisoa, Tiago Moreira et al.•BioSocieties•2014

  Añadir item

• Historicising involvement

  Open Access•C R Montenegro, F Cornish•Critical Public Health•2017

  Añadir item

• Turning experience into expertise

  Taina Meriluoto•Critical Policy Studies•2017

  Añadir item

• Recovering our Stories”

  Open Access•Lucy Costa, Jijian Voronka et al.•Studies in Social Justice•2012

  Añadir item

• Deep experiential knowledge

  T Noorani, Magnus Karlsson et al.•Evidence & Policy•2019

  Añadir item

• Patients’ experiential knowledge and expertise in health care

  Open Access•Elena Maker Castro, Eva Marie Castro et al.•Social Theory & Health•2018

  Añadir item

• Beyond the counter-narrative

  Alexandra L Adame, Roger M Knudson•Narrative Inquiry•2007

  Añadir item

• Service user entrepreneurs and claims to authority – a case study in the mental health area

  Open Access•Hilda Näslund, Stefan Sjöström et al.•European Journal of Social Work•2019

  Añadir item

• It Shows That There's No Limits’

  Open Access•Claire Mayer, Karen McKenzie•Health & Social Care in the…•2017

  Añadir item

• Towards Hybridization

  Open Access•Urban Markström, Magnus Karlsson•Voluntas Revista Internacional de…•2012

  Añadir item

• Incorporation and Individualization of Collective Voices

  Open Access•Erik Eriksson, Erik M Eriksson•Voluntas Revista Internacional de…•2018

  Añadir item

• Chandra Mohanty and the Revaluing of “Experience”

  Open Access•Shari Stone-Mediatore•Hypatia•1998

  Añadir item

• To tell the right story

  Open Access•Erik Eriksson, Erik M Eriksson•Journal of Comparative Social Work•2013

  Añadir item

• Users as Citizens

  Open Access•Marian Barnes•Social Policy and Administration•1999

  Añadir item

• Introduction to the Special Issue on Mental Health Self‐Help

  Open Access•Louis D Brown, Matthew D Shepherd et al.•American Journal of Community…•2008

  Añadir item

• A Longitudinal study of mental health consumer/survivor initiatives

  Open Access•R Janzen, Gerald Nelson et al.•Journal of Community Psychology•2006

  Añadir item

• What's in a Name

  Hugh Mclaughlin•The British Journal of Social Work•2009

  Añadir item

• Egna Erfarenhetens Marknad

  Open Access•Erik Eriksson•Sociologisk Forskning•2019

  Añadir item

• Experiential Knowledge

  Thomasina Borkman•Social Service Review•1976

  Añadir item

• The figure of authority

  Leila Dawney•Journal of Political Power•2013

  Añadir item

• A Ladder Of Citizen Participation

  Sherry R Arnstein•Journal of the American Institute…•1969

  Añadir item

• The Everyday World as Problematic

  Joey Sprague, Dorothy E Smith•Contemporary Sociology A Journal…•1989

  Añadir item

• "Should Blacks Represent Blacks and Women Represent Women? A Contingent "Yes

  Joanna Mansbridge, Jane Mansbridge•The Journal of Politics•1999

  Añadir item

• Explaining Swedish Corporatism

  Open Access•Bo Rothstein•Scandinavian Political Studies•1992

  Añadir item

• The Logic of Connective Action

  W L Bennett, Alexandra Segerberg•Information Communication & Society•2012

  Añadir item

• Sciences from Below

  Caren Kaplan, Sandra Harding et al.•Sciences from Below•2008

  Añadir item

• The Politics of 'people with lived experience' Experiential Authority and the Risks of Strategic Essentialism

  Jijian Voronka•Philosophy, psychiatry & psychology•2016

  Añadir item

• Three Approaches to Qualitative Content Analysis

  Open Access•Hsiu-Fang Hsieh, Sarah E Shannon•Qualitative Health Research•2005

  Añadir item

• Contending Stories

  Open Access•Francesca Polletta•Qualitative Sociology•1998

  Añadir item

• Patient and public involvement in health research

  Open Access•Diana Rose•Journal of Health Psychology•2014

  Añadir item

• The Concept of Social Movement

  Open Access•M Diani•The Sociological Review•1992

  Añadir item

• Situated Knowledges

  Donna Haraway•Feminist Studies•1988

  Añadir item

• User Involvement in Mental Health Services

  Open Access•Lydia Lewis•Sociological Research Online•2014

  Añadir item

• Emotion work in animal rights activism

  Open Access•Kerstin Jacobsson, Jonas Lindblom•Acta Sociologica•2013

  Añadir item

• Emotions and Social Movements

  James M Jasper•Annual Review of Sociology•2011

  Añadir item

• Embodied health movements

  Open Access•Phil Brown, Zavestoski et al.•Sociology of Health & Illness•2004

  Añadir item

• The Evidence of Experience

  Joan W Scott•Critical Inquiry•1991

  Añadir item

• From Democratic Consultation to User-employment

  Open Access•Tone Alm Andreassen•Journal of Social Policy•2018

  Añadir item