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Patient narrative

An ‘on-switch’ for evaluating best interests

Bibliographic Data

ID12284232
AuthorsCarolyn Johnston (0000-0002-7910-5117, King's College London, corresponding author), Natalie Banner (0000-0002-7329-2601, Currently Policy Officer and EAGDA Secretariat, Wellcome Trust, London), Angela Fenwick (0000-0002-5536-5686, University of Southampton)
Year2016
Volume38
Issue3
Pages249-262
Publication date2016-07-02
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueThe Journal of Social Welfare Law (JOURNAL)
Journal identifiersISSN: 0141-8033 • E-ISSN: 1469-9621
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/09649069.2016.1228146
OpenAlexW2519421876
LanguageEN
Citations received1
References cited12

This article examines how the wishes, feelings, values and beliefs of adults lacking capacity can be evaluated and the extent to which they are given effect in best interests decision-making. One way of fulfilling the clinician’s legal responsibilities to take a patient’s preferences into account is to explicitly link these to the notion of narrative. Narratives provide a compelling grounding and give weight to views and values that may have been informally and consistently expressed in the past. An evaluation of recent case law suggests that the trajectory of a person’s life, their character and personality, and the perspectives of those with whom the patient has valued relationships are given increasing judicial recognition. Attending to the narrative of the patient could lead to a more sophisticated judgement of best interests than an objective ‘balance sheet’ approach would allow and enable greater alignment with the UN Convention on the Rights of Persons with Disabilities

Balance (ability · Best interests · Feeling · Judgement · Law and economics · Narrative · Political science · Sociology · Ethics and Legal Issues in Pediatric Healthcare · Ethics in medical practice · Law · Patient Dignity and Privacy · Psychology · Social Psychology

  • A capabilities approach to best interests assessments

    Open Access•Michael Thomson•Legal Studies•2021

  • Against Narrativity

    Open Access•Galen Strawson•Ratio•2004

  • Why study narrative?

    Open Access•Trisha Greenhalgh, Brian Hurwitz•BMJ•1999

  • The Accuracy of Surrogate Decision Makers

    David I Shalowitz, Elizabeth Garrett‐Mayer et al.•A.M.A. Archives of Internal…•2006

  • Dworkin on Dementia

    Rebecca Dresser•The Hastings Center Report•1995

  • The limits of narrative

    Angela Woods, Abigail Woods•Medical Humanities•2011

  • The U nited N ations C onvention on the R ights of P ersons with D isabilities and M ental H ealth L aw

    Open Access•Peter Bartlett•Modern Law Review•2012

Unique citing works1
Citations per year0,2
Citation span2021 - 2021 (1)
Citation velocityhistorical
Highly citedNo
Citation typesNeutral: 1

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