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Optimizing access to and use of formal dementia care

Qualitative findings from the European Actifcare study

Datos Bibliográficos

ID12288317
AutoresLiselot Kerpershoek (0000-0001-6774-3480, Alzheimer Centre Limburg Maastricht University Maastricht Netherlands), Claire Wolfs (0009-0000-9715-0520, Alzheimer Centre Limburg Maastricht University Maastricht Netherlands), Frans R J Verhey (0000-0002-8307-8406, Alzheimer Centre Limburg Maastricht University Maastricht Netherlands), Hannah Jelley (0000-0002-2164-7327, Bangor University Bangor UK), Bob Woods (0000-0002-6781-651X, Bangor University Bangor UK), Anja Bieber (0000-0002-9506-2532, Martin‐Luther University Halle‐Wittenberg Halle Germany), Gabriele Bartoszek (Martin‐Luther University Halle‐Wittenberg Halle Germany), Astrid Stephan (0000-0002-5068-918X, Martin‐Luther University Halle‐Wittenberg Halle Germany), Geir Selbaek (0000-0001-6511-8219, Norwegian National Advisory Unit on Ageing and Health Vestfold Hospital Tonsberg Norway), Siren Eriksen (0000-0002-5541-0934, Norwegian National Advisory Unit on Ageing and Health Vestfold Hospital Tonsberg Norway), Britt‐Marie Sjölund (0000-0002-4621-3816, Aging Research Center (ARC), Department of Neurobiology, Care Sciences and Society (NVS) Karolinska Institutet and Stockholm University Stockholm Sweden), Louise Hopper (0000-0002-9382-5241, School of Nursing and Human Sciences Dublin City University Dublin Ireland), Kate Irving (0000-0002-9255-4574, School of Nursing and Human Sciences Dublin City University Dublin Ireland), Maria J Marques (0000-0001-9214-4180, CEDOC, Nova Medical School, Faculdade de Ciências Médicas Universidade Nova de Lisboa Lisbon Portugal), Manuel Goncalves-Pereira (0000-0003-1419-1306, Universidade Nova de Lisboa), Manuel Gonçalves‐Pereira (CEDOC, Nova Medical School, Faculdade de Ciências Médicas Universidade Nova de Lisboa Lisbon Portugal), Elisa Portolani (0000-0002-8528-1483, Centro San Giovanni di Dio Fatebenefratelli), Daniel Portolani (IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli Brescia Italy), Orazio Zanetti (0000-0002-5408-0048, IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli Brescia Italy), Marjolein De Vugt (0000-0002-2113-4134, Transnational University Limburg, autor de correspondencia)
Año2019
Volumen27
Número5
Páginase814-e823
Fecha de publicación2019-07-10
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaHealth & Social Care in the Community (JOURNAL)
Identificadores de la revistaISSN: 0966-0410 • E-ISSN: 1365-2524
EditorialWiley (PUBLISHER • GB)
DOI10.1111/hsc.12804
PMID31293018
OpenAlexW2959392380
IdiomaEN
Citas recibidas7
Referencias citadas16

This paper reports on qualitative data from the Actifcare study investigating experiences, attitudes, barriers and facilitators concerning access to and use of formal care. A total of 85 semi-structured in-depth interviews were conducted in eight European countries. Results were analysed with a deductive content analysis, first within country and then integrated in a cross-national analysis. Overall, analysis of the in-depth interviews revealed two major themes with five subcategories. The results can be summarised in an optimal pathway for access to dementia care. This pathway includes fixed factors such as disease-related factors and system-related factors. In addition there are personal factors that are subject to change such as attitudes towards care. An important finding consisted of the necessity of having sufficient information about the disease and available care and having a key contact person to guide you through the process of finding suitable care while monitoring your needs. In addition, it is important to involve your social network as they can take on care-giving tasks. It is helpful to have a diagnosis (in most countries). Concerning decision-making, the person closest to the person with dementia is in the majority of cases the one who makes the ultimate decision to access and use services and he/she should therefore be supported in this process. These results provide insight into the factors that influence the pathway to formal care use and help professionals to enhance access to formal dementia care by focusing on factors that can be modified

Dementia · Pathology · Qualitative research · Social science · Sociology · Aging, Elder Care, and Social Issues · Geriatric Care and Nursing Homes · Intergenerational Family Dynamics and Caregiving · Medicine · Psychology

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Obras citantes distintas7
Citas por año1,4
Intervalo de citas2021 - 2025 (5)
Velocidad de citaciónrecent
Altamente citadoNo
Tipos de citaNeutras: 7
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