Sociocultural Dimensions of Community‐Based Palliative Care in Brazil and Indonesia
An Ethnographic Study
Bibliographic Data
| ID | 12288397 |
|---|---|
| Authors | Annemarie Samuels (0000-0002-7379-5591, Leiden University, corresponding author), Hanum Atikasari (0000-0003-1263-9306, Leiden University), Natashe Lemos Dekker (0000-0001-5523-4523, Amsterdam University of Applied Sciences) |
| Editors | Qing-Wei Chen |
| Year | 2025 |
| Volume | 2025 |
| Issue | 1 |
| Publication date | 2025-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health & Social Care in the Community (JOURNAL) |
| Journal identifiers | ISSN: 0966-0410 • E-ISSN: 1365-2524 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1155/hsc/4624886 |
| OpenAlex | W7117566226 |
| Language | EN |
| References cited | 34 |
Background Palliative care services are increasingly implemented in diverse sociocultural settings around the world. Aim Our ethnographic project aimed to explore the sociocultural and organizational dimensions of community‐based palliative care in Brazil and Indonesia. Methods We used ethnographic research methods to study local models of palliative care provision in Brazil and Indonesia. These countries were chosen because of similarities in stages of palliative care service development and yet differences in healthcare organization and dominant religion. After scoping initiatives, in each country, one thriving community‐based initiative was selected for an in‐depth case study through semistructured interviews and participant observation. Thematic analysis was first done for the individual cases and then compared across cases in team meetings. Results The case studies of community‐based initiatives reveal (1) how local values are included in the development and practice of palliative care; (2) how these initiatives build on existing local health care structures; and (3) how local palliative care workers introduce the term “palliative care” with sensitivity to the local cultural context. Conclusion As palliative care services are implemented in various sociocultural settings, a better understanding of successful community‐based models for palliative care provision is needed to adapt services to local contexts
Ethnography · Health care · Palliative care · Participant observation · Sociocultural evolution · Thematic analysis · Thriving · Grief, Bereavement, and Mental Health · Palliative and Oncologic Care · Palliative Care and End-of-Life Issues
Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage
Translation of a community palliative care intervention
The expression of ‘policy’ in palliative care
Cultural assumptions and the good death
Understanding community engagement in end-of-life care
Common or multiple futures for end of life care around the world? Ideas from the 'waiting room of history
Waiting for Care and Community Organizing for Serious Health-Related Suffering in Kerala, India
Guidelines for anthropological research
Provincializing bioethics
Silence at the end of life
| Citation velocity | historical |
|---|---|
| Highly cited | No |