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What outcomes are important to people with long-term neurological conditions using integrated health and social care

Bibliographic Data

ID12289248
AuthorsGemma Frances Spiers (0000-0003-2121-4529, University of York, corresponding author), Gemma Spiers (Social Policy Research Unit; University of York; York UK), Fiona Aspinal (0000-0003-3170-7570, Social Policy Research Unit; University of York; York UK), Sylvia Bernard (Social Policy Research Unit; University of York; York UK), Gillian Parker (0000-0002-2221-6748, Social Policy Research Unit; University of York; York UK)
Year2014
Volume23
Issue5
Pages559-568
Publication date2014-12-02
Open AccessYes
TypeARTICLE
VenueHealth & Social Care in the Community (JOURNAL)
Journal identifiersISSN: 0966-0410 • E-ISSN: 1365-2524
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hsc.12171
PMID25443968
OpenAlexW2136948471
LanguageEN
Citations received3
References cited15

Measuring the outcomes that are meaningful to people with long-term neurological conditions (LTNCs) using integrated health and social care services may help to assess the effectiveness of integration. Conventional outcomes tend not to be derived from service user experiences, nor are they able to demonstrate the impact of integrated working. This paper reports findings about outcomes identified as being important to people with LTNCs using integrated services. We undertook qualitative work with five community neuro-rehabilitation teams that were integrated in different ways and to different degrees. In-depth, semi-structured interviews were conducted with 35 people with LTNCs using these teams. Data were collected between 2010 and 2011 and analysed using an adapted version of the Framework approach. We identified 20 outcomes across three domains: personal comfort outcomes, social and economic participation outcomes, and autonomy outcomes. Inter-relationships between outcomes, both within and across domains, were evident. The outcomes, and the inter-relationships between them, have implications for how individuals are assessed in practice

Autonomy · Community integration · Health care · Integrated care · Long-term care · Older people · Social care · Social integration · Sociology · Applied Psychology · Healthcare innovation and challenges · Interprofessional Education and Collaboration · Medicine · Mental Health and Patient Involvement · Nursing · Psychology · Social Work · Gerontology · Rehabilitation

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Citations per year0.6
Citation span2021 - 2026 (6)
Highly citedNo

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