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Barriers to dying at home

The impact of poor co-ordination of community service provision for patients with cancer

Bibliographic Data

ID12289564
AuthorsMary Oâ Brien (corresponding author), Mary O’Brien (Edge Hill University, corresponding author), Barbara Jack (0000-0001-6318-516X, Edge Hill University)
Year2009
Volume18
Issue4
Pages337-45
Publication date2009-12-01
Open AccessYes
TypeARTICLE
VenueHealth & Social Care in the Community (JOURNAL)
Journal identifiersISSN: 0966-0410 • E-ISSN: 1365-2524
PublisherWiley (PUBLISHER • GB)
DOI10.1111/j.1365-2524.2009.00897.x
PMID20039968
OpenAlexW2052156862
LanguageEN
Citations received5
References cited32

For patients dying of cancer, there is an emphasis on giving choice regarding preferred location for care, with the option of dying at home, which is integral to UK government health initiatives such as the End of Life Care Programme. However, patients continue to be admitted to hospital in the terminal phase of their illness when they have expressed a desire to die at home. A qualitative study, using two audio tape-recorded focus group interviews, with a purposive sample of district nurses and community specialist palliative care nurses (19) was undertaken across two primary care trusts in the north west of England. Data were analysed using a thematic analysis approach. From a service provision perspective, the results reveal that poor discharge planning and co-ordination, difficulty in establishing additional equipment and services together with inadequate out of hours medical provision were all factors contributing to hospital admissions for patients with cancer in the last hours and days of life, and thus were barriers to dying at home

Business · End-of-life care · Family medicine · Focus group · Government (linguistics · Ordination · Palliative care · Qualitative research · Sample (material · Service (business · Sociology · Thematic analysis · Geriatric Care and Nursing Homes · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues

  • Palliative Care

    Erika Zelko, Polona Selič et al.•Materia Socio Medica•2017

  • Informal caring networks for people at end of life

    John Rosenberg, John P Rosenberg et al.•Health Sociology Review•2014

  • Bringing our dying home

    Debbie Horsfall, Kerrie Noonan et al.•Health Sociology Review•2012

  • Making community palliative and end‐of‐life care sustainable; investigating the adaptability of rural Australian service provision

    Open Access•Evelien Spelten, Julia van Vuuren et al.•Health & Social Care in the…•2021

  • General practice and specialist palliative care teams

    Open Access•Barry Keane, Gary Bellamy et al.•Health & Social Care in the…•2015

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    Open Access•D A Clark, David Clark•BMJ•2002

  • Qualitative evaluation and research methods

    Open Access•David Ellis•International Journal of…•1990

  • Focus Groups as Qualitative Research

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  • Focus Groups in Social Research

    Michael Bloor, JULIET C FRANKLAND et al.•Focus groups in social research•2001

  • A sense of security for cancer patients at home

    Open Access•H Mckenzie, Maureen Boughton et al.•Health & Social Care in the…•2007

  • Qualitative Data Analysis

    Open Access•Matthew B Miles, A Michael Huberman•Journal of Environmental Psychology•1994

  • Place of death and access to home care services

    Open Access•Gunn Grande, G E Grande et al.•Social Science & Medicine•1998

Citations per year0.36
Citation span2012 - 2021 (10)
Highly citedNo

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