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Caregiving work

The experiences and needs of caregivers in Australia

Bibliographic Data

ID12289702
AuthorsAspa Sarris (0000-0001-6819-8883, School of Psychology The University of Adelaide Adelaide SA Australia, corresponding author), Martha Augoustinos (0000-0002-7212-1499, School of Psychology The University of Adelaide Adelaide SA Australia), Nicole Williams (0000-0001-9451-4456, School of Psychology The University of Adelaide Adelaide SA Australia), Bobbie Ferguson (0009-0008-4225-9252, School of Psychology The University of Adelaide Adelaide SA Australia), Brooke Ferguson
Year2020
Volume28
Issue5
Pages1764-1771
Publication date2020-04-21
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth & Social Care in the Community (JOURNAL)
Journal identifiersISSN: 0966-0410 • E-ISSN: 1365-2524
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hsc.13001
PMID32319169
OpenAlexW3016479647
LanguageEN
Citations received4
References cited19

A considerable evidence base exists demonstrating the high prevalence of family caregiving in the community; however, there is a paucity of in-depth research examining the impact of family caregiving on the living and employment needs of those providing this unpaid service. This study employed a qualitative interview design with purposive sampling to examine the experiences of family caregivers, in order to examine how family caregiving decisions are made, the nature and challenges of caregiving work, and living and work supports that may enhance the caregiving experience. A sample of 12 adults providing care and assistance to family members with a range of disabilities, chronic conditions and long-term illnesses were interviewed. The results showed that family caregivers 'fall into' the caregiving role and often continue to provide care indefinitely without pay and with little or no financial support from others. In describing the best aspects of their experience many caregivers talked about helping their care recipient remain in their home and maintain their independence. In describing the worst aspects of their experience, all referred to the living and financial challenges of the caregiving work, and many highlighted the impact of their caregiving work on their employment and career needs. In conclusion, there is a need for public policies, programs and health services in Australia to better respond to the living, financial and support needs of family caregivers as health service providers, as well as their employment, development and career needs which are seriously impacted upon by caregiving work

Work (physics · Engineering · Family Support in Illness · Intergenerational Family Dynamics and Caregiving · Medicine · Migration, Aging, and Tourism Studies · Nursing · Psychology · Gerontology

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Unique citing works4
Citations per year0,8
Citation span2021 - 2026 (6)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 4

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