Carers' quality of life and experiences of adult social care support in England
Bibliographic Data
| ID | 12290296 |
|---|---|
| Authors | Stacey Rand (0000-0001-9071-2842, Personal Social Services Research Unit (PSSRU); University of Kent; Canterbury UK, corresponding author), Janet Malley (0000-0001-5759-1647, Personal Social Services Research Unit (PSSRU); University of Kent; Canterbury UK) |
| Year | 2013 |
| Volume | 22 |
| Issue | 4 |
| Pages | 375-385 |
| Publication date | 2013-12-12 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health & Social Care in the Community (JOURNAL) |
| Journal identifiers | ISSN: 0966-0410 • E-ISSN: 1365-2524 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/hsc.12089 |
| PMID | 24330095 |
| PMCID | PMC4265286 |
| OpenAlex | W1977786197 |
| Language | EN |
| Citations received | 27 |
| References cited | 29 |
Informal carers make a vital contribution to the well-being of the people they care for or look after. Against the policy background in England, the purpose of this study was to explore the views of carers who are in contact with adult social care support services. A qualitative study with 31 carers, who were recruited via local authorities and carers' organisations, was conducted between April and July 2012 to collect data on carers' experiences and perceptions of their quality of life (QoL) with and without adult social care and support for themselves or the person they look after. Through framework analysis, three key themes were identified: (i) definitions of social care services 'for' the carer or 'for' care recipient and social care outcomes; (ii) carers' access to social care services; and (iii) the meaning and value of informal care. We find that carers' QoL is affected by social care support directed at carers and support directed at those they care for, as well as access to services, the experience of stigma in communities, and in how individual needs and preferences are considered when making decisions about care. While there is much to welcome in the direction of policy in England, this study has shown that there are some gaps in thinking around these areas that will need to be addressed if the lives of carers are to be improved
Meaning (existential · Perception · Political science · Psychiatry · Public relations · Qualitative research · Quality of life (healthcare · Social care · Social support · Social Welfare · Sociology · Stigma (botany · Value (mathematics · Family Support in Illness · Healthcare innovation and challenges · Intergenerational Family Dynamics and Caregiving · Medicine · Nursing · Psychology · Social Psychology
The role of adult social care services in improving the quality of life of older carers and the individuals they support
Challenges and Lifelines
Are reasons for care‐giving related to carers’ care‐related quality of life and strain? Evidence from a survey of carers in England
Assessing satisfaction with social care services among black and minority ethnic and white British carers of stroke survivors in England
They’re always in a hurry” – Older people ́s perceptions of access and recognition in health and social care services
Social care‐related quality of life of people with dementia and their carers in England
The quality of life of older carers and the people they support
Applying a dyadic outcomes approach to supporting older carers and care‐recipients
A fifty mile round trip to change a lightbulb’
Hidden caring, hidden carers? Exploring the experience of carers for people with long‐term conditions
How have the Care Act 2014 ambitions to support carers translated into local practice? Findings from a process evaluation study of local stakeholders' perceptions of Care Act implementation
A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers
How well do the adult social care outcomes toolkit for carers, carer experience scale and care-related quality of life capture aspects of quality of life important to informal carers in Australia
Examining the underpinnings of decisions to allocate public resources to social care
The impact of social care services on carers’ quality of life
The consequences for unpaid carers of unmet need for long-term care services in England
Issues and challenges in comparing carers’ quality of life in England and Japan
Sustainable care
Inequalities in receipt of long-term care services by disabled or older people and co-resident carer dyads in England
The carer-related knowledge exchange network (Caren)
Supportive Practice with Carers of People with Substance Misuse Problems
Family members of older persons with multi-morbidity and their experiences of case managers in Sweden
Carers, Choice and Personalisation
The role of formal care services in supporting young people who provide unpaid care in England
What can the experiences of young adult carers tell us about what can make services more helpful for them and their families
Carers’ involvement in telecare provision by local councils for older people in England
A Qualitative Study on How Social Workers From Regional and Metropolitan Queensland, Australia Perceive the Impact of the National Prioritisation System on Hospital Discharge Planning
Cognitive Interviewing
Outcomes of social care for adults
Caregiving as a Risk Factor for Mortality
Qualitative data analysis for applied policy research
Health effects of caregiving
Caregiving as a Dyadic Process
The effects of informal care on paid-work participation in Great Britain
Interactions between care-giving and paid work hours among European midlife women, 1994 to 1996
Exploring causal effects of combining work and intergenerational support on depressive symptoms among middle-aged women
Rationed Care
Models of Carers
| Unique citing works | 27 |
|---|---|
| Citations per year | 2,25 |
| Citation span | 2014 - 2025 (12) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 27 |