Caring for children with profound intellectual and multiple disabilities
Images and metaphors expressed by Dutch parents
Bibliographic Data
| ID | 12312975 |
|---|---|
| Authors | Liesbeth Geuze (0000-0003-0941-9310, The University of Humanistic Studies, Utrecht, The Netherlands, corresponding author), Anne Goossensen (0000-0001-5447-2167, The University of Humanistic Studies, Utrecht, The Netherlands) |
| Year | 2023 |
| Volume | 39 |
| Issue | 7 |
| Pages | 1840-1858 |
| Publication date | 2023-01-11 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Disability & Society (JOURNAL) |
| Journal identifiers | ISSN: 0968-7599 • E-ISSN: 1360-0508 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/09687599.2023.2164846 |
| OpenAlex | W4319841063 |
| Language | EN |
| Citations received | 1 |
| References cited | 32 |
Parenting a child with profound intellectual and multiple disabilities has expanded practical and existential implications. This study contributes to understanding parents’ lifeworld and their vulnerabilities by examining the deeper layers of what parents express through their use of images and metaphors. In-depth interviews with 25 Dutch parents were analysed by conducting systematic metaphor analysis informed by metaphor theory. We used the concept of social imaginary to reflect on the sociocultural or collective dimension of parents’ discourse. The following central metaphorical concepts were identified: Stagnation; Labyrinth; Battle; Transition; Medal; and Parallel worlds. Identified images and metaphors revealed an interplay of imaginaries regarding health and normality, autonomy and responsibility and what lives are worth living. Imaginaries may be transformed to frames that are more inclusive to families with children with disabilities. The study supports the demand to create humane care systems that address families’ vulnerabilities
Ableism · Autonomy · Developmental psychology · Disability studies · Epistemology · Existentialism · Intellectual disability · Lifeworld · Linguistics · Metaphor · Normality · Perspective (graphical · Psychoanalysis · Social science · Sociocultural evolution · Sociology · Subjectification · The Imaginary · Counseling, Therapy, and Family Dynamics · Disability Rights and Representation · Family and Disability Support Research · Gender Studies · Psychology · Social Psychology
Phenomenology for Therapists
The Imaginary
Metaphors We Live By
Systematische Metaphernanalyse als Methode der qualitativen Sozialforschung
Finding Culture in Talk
A Secular Age
Exploring the Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities
Systematic Metaphor Analysis as a Method of Qualitative Research
Becoming rhizomatic parents
Raising a child with a disability
Whose responsibility? Resilience in families of children with developmental disabilities
Sources of the self
Using Metaphor as a Qualitative Analytic Approach to Understand Complexity in Primary Care Research
Mothering children who have disabilities
How families of children with complex care needs participate in everyday life
The linear medical model of disability
Rethinking resilience in families of children with disabilities
| Unique citing works | 1 |
|---|---|
| Citations per year | 0,33 |
| Citation span | 2023 - 2023 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |