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Selling your soul to the devil

An autoethnography of pain, pleasure and the quest for a child

Bibliographic Data

ID12313383
AuthorsAnn Neville‐Jan (University of Southern California, corresponding author), Ann Neville‐Jan ∗
Year2004
Volume19
Issue2
Pages113-127
Publication date2004-03-01
Open AccessNo
TypeARTICLE
VenueDisability & Society (JOURNAL)
Journal identifiersISSN: 0968-7599 • E-ISSN: 1360-0508
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/0968759042000181758
OpenAlexW1982212464
LanguageEN
Citations received14
References cited27

In this article I present an autoethnography in the form of a quest narrative linked as a self‐reflexive text to my continuing research of children and adults with spina bifida. My story centers on the themes of chronic illness, pain and sexuality, highlighting gaps in the literature related to these topics. I narrate my story as a manifesto for women with physical impairments to break their silence and talk about their sexuality. I recommend autoethnography as a method of understanding disability as embodied. Faustus: Now tell me, what says Lucifer thy lord? Mephistopheles: That I shall wait on Faustus whilst he lives, So he will buy my service with his soul. (Christopher Marlowe, Dr Faustus)

Aesthetics · Art · Autoethnography · Embodied cognition · Human sexuality · Literature · Narrative · Pain and pleasure · Pleasure · Psychoanalysis · Psychotherapist · Silence · Sociology · Soul · Theology · Disability Rights and Representation · Ethics and Legal Issues in Pediatric Healthcare · Family and Disability Support Research · Gender Studies · Philosophy · Psychology

  • Blurry Lines

    Open Access•Laura Yvonne Bulk, Bethan Collins•Qualitative Inquiry•2024

  • Under a Blue Sky – Part 1

    Ella Pugliese•Anthrovision•2015

  • Narrative and its potential contribution to disability studies

    Brett Smith, A C Sparkes•Disability & Society•2007

  • Two’s company, three’s a crowd

    Emma Louise Mckinney•Disability & Society•2017

  • Striving toward inclusive research practices

    Annabelle L Grundy, Michelle K Mcginn et al.•Disability & Society•2005

  • The embodied becoming of autism and childhood

    Jill Smith, Jill C Smith•Disability & Society•2016

  • I want them to see that I feel normal’

    Wenche Bekken•Disability & Society•2014

  • Bullying, misogyny and feminist whistleblowing

    Open Access•E Ettorre•Women s Studies International Forum•2023

  • Ethical confessions of the “I” of autoethnography

    Open Access•Clair Doloriert, Sambrook et al.•Qualitative Research in…•2009

  • How Autoethnography Works

    Open Access•Dmitry Rogozin•Sotsiologicheskoe Obozrenie /…•2015

  • Telling Their Stories

    Open Access•Henrietta Pinchon•Qualitative Report•2015

  • A creative non-fiction account of autistic youth integrated physical education experiences

    Justin A Haegele, Anthony J Maher•Disability & Society•2021

  • Feminist Autoethnography, Gender, and Drug Use

    Open Access•E Ettorre•Contemporary Drug Problems•2017

  • On auto-ethnography

    Open Access•Sally Denshire•Current Sociology•2014

  • Composing ethnography

    Carolyn Ellis•Composing ethnography•1996

  • Missing pieces

    Irving Kenneth Zola•Missing pieces•1982

  • Sexual Politics of Disability

    Dominic Davies, Kath Gillespie-Sells et al.•Sexual Politics of Disability•1996

  • Sexuality and Disability

    Open Access•Mitchell S Tepper•Sexuality and Disability•2000

  • Occupational Science

    Open Access•Florence Clark, Florence A Clark et al.•The American Journal of…•1991

  • The Wounded Storyteller

    A W Frank•Wounded Storyteller•1995

  • The social model of disability

    Torn Shakespeare, N Watson•Exploring theories and expanding…•2004

  • Auto/Ethnography

    Deborah Reed-Danahay, Deborah E Reed-Danahay•Auto/ethnography•2021

  • The Politics of Disablement

    Open Access•Michael Oliver, M H Oliver et al.•The Politics of Disablement…•1990

  • Telling Sexual Stories

    Ken Plummer, PLUMMER PLUMMER•Telling Sexual Stories•2002

  • Negotiating Psycho-emotional Dimensions of Disability and their Influence on Identity Constructions

    Donna Reeve•Disability & Society•2002

  • The Social Model of Disability and the Disappearing Body

    Bill Hughes, Kevin B Paterson et al.•Disability & Society•1997

  • Learning Difficulties', the Social Model of Disability and Impairment

    Dan Goodley•Disability & Society•2001

  • Multiple Reflections of Child Sex Abuse

    Open Access•Carol Rambo Ronai•Journal of Contemporary Ethnography•1995

  • Shattered Lives

    Open Access•Carolyn Ellis•Journal of Contemporary Ethnography•2002

  • There are Survivors

    Open Access•Carolyn Ellis•Sociological Quarterly•1993

Citations per year0.67
Citation span2005 - 2024 (20)
Highly citedNo

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