Feeling the benefit? Fluctuating illness and the world of welfare
Bibliographic Data
| ID | 12314575 |
|---|---|
| Authors | Elizabeth Price (0000-0002-7902-4202, University of Hull, Hull, UK and Northern Ireland, corresponding author), L Walker (0000-0002-1652-5800, University of Hull, Hull, UK and Northern Ireland), Sara Booth (0000-0003-2996-4578, University of Cambridge) |
| Year | 2019 |
| Volume | 35 |
| Issue | 8 |
| Pages | 1315-1336 |
| Publication date | 2019-10-31 |
| Open Access | No |
| Type | ARTICLE |
| Venue | Disability & Society (JOURNAL) |
| Journal identifiers | ISSN: 0968-7599 • E-ISSN: 1360-0508 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/09687599.2019.1680346 |
| OpenAlex | W2986307336 |
| Language | EN |
| Citations received | 3 |
| References cited | 29 |
This article explores the experiences of people living with fluctuating long-term conditions, with a particular focus on the UK welfare benefits system. Respondents in this study suggested that this system constitutes a critical barrier to maintaining a positive work-based identity, being characterised by assessment and decision-making processes that are inappropriately focused and inflexibly implemented. Here, we report the findings from a cross sectional online study of people aged 18 to 75+, resident in the UK, with a self-reported diagnosis of lupus, arguably, the archetypal fluctuating condition. We explore some of the key themes respondents living with lupus identified in the context of striving to maintain a sense of themselves as productive and functional citizens. We conclude that there is a critical lack of attention afforded to the experience of fluctuating illness within the State benefits system and offer some strategies for better understanding, and addressing, this issue
Context (archaeology · Feeling · Identity (music · Political science · Politics · Public relations · Sociology · Welfare · Welfare state · Employment and Welfare Studies · Mental Health and Patient Involvement · Psychology · Social Psychology · Systemic Lupus Erythematosus Research
Illness
The Sociology of Health and Illness
No longer deserving? Sickness benefit reform and the politics of (ill) health
The sociology of chronic illness
Living with and responding to the 'scrounger' narrative in the UK
Welfare Conditionality in Lived Experience
After Atos Healthcare
Reaping the benefits of sickness? Long-term illness and the experience of welfare claims
The language of shirkers and scroungers?’ Talking about illness, disability and coalition welfare reform
Feeling well while chronically ill or impaired
Private Tragedy in Social Context? Reflections on Disability, Illness and Suffering
The unwilling and the unwell’? Exploring stakeholders’ perceptions of working with long term sickness benefits recipients
Towards an Affirmation Model of Disability
The Contradictions of Welfare to Work
Fear of the Brown Envelope
Medical nemesis
Using thematic analysis in psychology
Diagnostic vertigo
Complex syndromes, ambivalent diagnosis, and existential uncertainty
There's no pill to help you deal with the guilt and shame
Identity work and the 'unemployed' worker
Chronic illness as biographical disruption
Becoming incapacitated? Long-term sickness benefit recipients and the construction of stigma and identity narratives
Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept
| Citations per year | 1 |
|---|---|
| Citation span | 2023 - 2026 (4) |
| Highly cited | No |