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Beyond my Control’

Dealing with the Existential Uncertainty of Cancer in Online Texts

Bibliographic Data

ID12399352
AuthorsKaja Kvaale (0000-0001-9579-2095, University of Oslo, corresponding author), Olaug S Lian (0000-0002-5752-1486, UiT The Arctic University of Norway), Hilde Bondevik (0000-0002-7608-7216, University of Oslo)
Year2022
Volume32
Issue2
Pages192-208
Publication date2022-08-24
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueIllness Crisis & Loss (JOURNAL)
Journal identifiersISSN: 1054-1373 • E-ISSN: 1552-6968
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/10541373221122874
OpenAlexW4292870122
LanguageEN
Citations received2
References cited29

In this paper, we explore how existential aspects of being diagnosed and living with cancer are shared in stories that are publicly communicated online. Through a narrative analysis of online texts and blogs, we explore how people deal with their cancer experiences, how cultural norms about illness are expressed in their stories and why they write and publish their stories online. We found that the writers described cancer diagnosis as a defining moment in their lives. They portrayed it as a crisis that was followed by unpredictability, doubt, grief and loss, fitting with the term ‘existential uncertainty’. Writing and sharing their stories online, connecting with others and staying positive were ways of dealing with this uncertainty. These naturally occurring data offer insights into phenomena that are not easily accessed in a clinical setting; moreover, they provide unique insights into the cultural norms in which online illness narratives are embedded

Epistemology · Existentialism · Grief · Linguistics · Narrative · Online community · Political science · Psychotherapist · Publication · World Wide Web · Computer Science · Digital Storytelling and Education · Discourse Analysis in Language Studies · Mental Health via Writing · Psychology · Social Psychology

  • ‘What would happen if I die in a foreign country?’

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  • Kept at a Distance

    Open Access•Margareta Aurén-Møkleby, Gunvor Aasbø et al.•Qualitative Health Research•2025

  • The Wounded Storyteller

    A W Frank•Wounded Storyteller•1995

  • Illness as Narrative

    Ann Jurecic•Illness as Narrative (Composition,…•2012

  • Living With Cancer

    A Mccosker, Raya Darcy•Information Communication & Society•2013

  • Zero Comments

    Open Access•Geert Lovink, Andreas Kallfelz•Zero Comments•2008

  • Networked Cancer

    Open Access•Carsten Stage•Networked Cancer•2017

  • Narrative Methods for the Human Sciences

    Open Access•Beverly D Metcalfe•Gender in Management An…•2008

  • Cancer Experience and its Narration

    Judy Z Segal•Literature and medicine•2012

  • Affective measures

    Carsten Stage•Distinktion Journal of Social…•2019

  • The Transformative Potential of Online Communication

    Shani Orgad•Feminist Media Studies•2005

  • Cancer diagnosis as discursive capture

    Open Access•Carla Willig•Social Science & Medicine•2011

  • The existential cancer journey

    Open Access•Elisabeth Assing Hvidt•Health An Interdisciplinary…•2017

  • United We Stand

    Open Access•Olaug S Lian, Sarah Nettleton•Qualitative Health Research•2015

  • Thinking differently about thinking positive

    Open Access•Sue Wilkinson, C Kitzinger•Social Science & Medicine•2000

  • The breast-cancer-ization of cancer survivorship

    Open Access•K Bell•Social Science & Medicine•2014

  • Illness and the Internet

    Open Access•Peter Conrad, Julia Bandini et al.•Health An Interdisciplinary…•2016

  • Negotiating uncertainty in clinical encounters

    Open Access•Olaug S Lian, Sarah Nettleton et al.•Social Science & Medicine•2021

  • Illness Narratives Revisited

    Open Access•Paul Atkinson•Sociological Research Online•2009

  • Chronic illness as biographical disruption

    Open Access•Michael Bury•Sociology of Health & Illness•1982

  • Existential and Clinical Uncertainty in the Medical Encounter

    Open Access•Clarissa Adamson, Christopher Adamson•Sociology of Health & Illness•1997

Unique citing works2
Citations per year2
Citation span2025 - 2026 (2)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 2

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