Ethical Considerations in the Use of Direct-to-Consumer Genetic Testing for Adopted Persons

Bibliographic Data

ID12460307
AuthorsThomas May (0000-0002-5474-1993, Washington State University Vancouver, corresponding author), Stephanie M Fullerton (0000-0002-0938-6048, University of Washington, Seattle, Washington, USA)
Year2020
Volume24
Issue1
Pages89-100
Publication date2020-10-14
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueAdoption Quarterly (JOURNAL)
Journal identifiersISSN: 1092-6755 • E-ISSN: 1544-452X
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/10926755.2020.1833391
OpenAlexW3122888556
LanguageEN
Citations received4
References cited29

The use of DTC genetic testing to identify health risks is increasingly popular. This is particularly the case for adopted persons, who often lack access to family health history information and who may see genetic testing as the best (and only) way to identify potential inherited disease risks. However, the development of genetic testing to fill gaps in family health history information for adopted persons has been hindered by several challenges including ethical concerns surrounding appropriate uses of biotechnology and its application to medicine and public health. Here, we will approach these concerns in the context of the “Four Principles Approach” articulated by Beauchamp and Childress. Through this approach, it is our aim to illustrate the need for careful consideration of often neglected risks and benefits before adoptees make the decision to engage genetic testing

Bioethics · Biology · Context (archaeology · Disease · Engineering ethics · Genetic testing · Pathology · Political science · Public health · Risk analysis (engineering · Biomedical Ethics and Regulation · BRCA gene mutations in cancer · Engineering · Ethics in Clinical Research · Law · Medicine · Psychology

Tools

Open DOI