Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

From Housewives to Activists

Lived Experiences of Mothers for Disability Rights in Taiwan

Bibliographic Data

ID12499248
AuthorsHeng‐hao Chang (0000-0002-0951-2235, corresponding author), Chang Heng-hao
Year2009
Volume15
Issue3
Pages34-59
Publication date2009-01-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueAsian Journal of Women s Studies (JOURNAL)
Journal identifiersISSN: 1225-9276 • E-ISSN: 2377-004X
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/12259276.2009.11666072
OpenAlexW2181324482
LanguageEN
Citations received12
References cited26

When a family has a disabled child, the mother usually takes on the caretaker role and also carries the social stigma associated with disability. Based on participant observation and in-depth interviews with members of the Parents Association for Persons with Intellectual Disabilities (PAPID), this article explores the meanings of activism for parents who participate in the disability rights movement. First, it shows the impact of disability stigma on family members, especially the mothers of disabled persons. Second, the study shows that the participants of this movement, mainly the mothers of intellectually disabled children, not only promote the welfare of their children but they also learn to confront social stigma and renegotiate their gender roles. Parents' associations have become an important public space for these mothers to escape home confinement and enjoy civic life. In contrast, the fathers who were interviewed saw activism as an obligation and were less likely to show emotional attachment to the civic organizations.Keywords: Disability rightssocial movementcivic organizationgenderstigmamotherhood

Developmental psychology · Obligation · Political science · Psychiatry · Sociology · Stigma (botany · Disability Rights and Representation · Family and Disability Support Research · Gender Studies · Intergenerational Family Dynamics and Caregiving · Psychology · Social Psychology

  • Lived Experiences of Mothers of Deaf Children amidst the Covid-19 Pandemic

    Open Access•Mary Stephanie A Agbay Mary Stephanie A Agbay, Mary Stephanie A Agbay et al.•Journal of Humanities and Social…•2024

  • Challenging and Facilitating Factors When Coping with the News of a Newborn’s Down Syndrome Diagnosis

    Adi Finkelstein, Yaacov G Bachner et al.•Health Communication•2023

  • Ally Burnout

    Open Access•G Wolbring, Rochelle Deloria•Societies•2025

  • Recognition Struggle

    Sik Ying Ho Petula•Asian Journal of Women s Studies•2011

  • Exploring caregiver experiences of stigma in Ghana

    Maria Zuurmond, Janet Seeley et al.•Disability & Society•2020

  • Tactics and Strategies of Family Adaptation among Parents Caring for Children and Youth with Developmental Disabilities

    Open Access•Elise J Matthews, Vivian Puplampu et al.•Global Qualitative Nursing Research•2021

  • Leisure Participation of Taiwanese Families Raising Children with Developmental Delays and Disabilities

    Open Access•Ya-Jung Lin•Children•2025

  • Autism, Stigma, and South Asian Immigrant Families in Canada

    Open Access•Fariha Shafi, Amirtha Karunakaran et al.•International Journal of…•2024

  • An Institutionalist Explanation of the Evolution of Taiwan's Disability Movement

    Open Access•I-lun Tsai, M S Ho et al.•Journal of Current Chinese Affairs•2010

  • Disability Policy Meets Cultural Values

    Open Access•Qian Fang, Heng‐hao Chang et al.•Ethics and Social Welfare•2024

  • How do daughters interpret care as a public issue? Exploring identity, emotion and discourse in the narratives of activist-inclined carers of older parents

    Laura M Funk, Wanda Hounslow et al.•Community Work & Family•2019

  • Perceived discrimination among caregivers of children with disabilities in China

    Open Access•Ling Li Leng, Lingli Leng et al.•Social Science & Medicine•2024

  • Stigma

    Erving Goffman•Stigma•2009

  • New Social Movements

    Open Access•Claus Offe•Institutionen, Normen,…•2019

  • Korean Workers

    Hagen Koo•Korean Workers•2001

  • Challenging Codes

    Open Access•Alberto Melucci•Challenging Codes•1996

  • The Search for Political Community

    Open Access•Paul Lichterman•Search for Political Community•1996

  • Repositioning mothers

    Sara Ryan, Katherine Runswick-Cole•Disability & Society•2008

  • A gaggle of raging grannies

    MIYA NARUSHIMA•International Journal of Lifelong…•2004

  • Political Generations, Micro-Cohorts, and the Transformation of Social Movements

    Nancy Whittier•American Sociological Review•1997

  • Social Movement Continuity

    Verta Taylor•American Sociological Review•1989

  • The Biographical Consequences of Activism

    Doug Mcadam•American Sociological Review•1989

  • Voice and Agency in Social Movement Outcomes

    Open Access•Kimberly B Dugan, Kimberly Dugan et al.•Qualitative Sociology•2006

  • What do you mean 'what's wrong with her

    Open Access•Sara E Green•Social Science & Medicine•2003

  • Identity Politics as High-Risk Activism

    Verta Taylor, Nicole C Raeburn•Social Problems•1995

  • Mothers Who Care

    Open Access•Rannveig Traustadottir•Journal of Family Issues•1991

  • Collective Identity and Social Movements

    Francesca Polletta, James M Jasper•Annual Review of Sociology•2001

  • Collective Identity in the Straight Edge Movement

    Open Access•Ross Haenfler•Sociological Quarterly•2004

  • Women's Work

    Open Access•T E Shriver, Amy Chasteen Miller et al.•Sociological Quarterly•2003

  • Gender Identity Expansion and Negotiation in the Toxic Waste Movement

    Open Access•Ann Herda-Rapp, Ann Herda‐rapp•Sociological Quarterly•2000

  • New Social Movement Theories

    Open Access•Steven M Buechler•Sociological Quarterly•1995

  • Living Stigma

    Open Access•Sara Green, Christine S Davis et al.•Sociological Inquiry•2005

  • Oh, those therapists will become your best friends

    Open Access•Sara E Green•Sociology of Health & Illness•2001

Unique citing works12
Citations per year0,75
Citation span2010 - 2025 (16)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 12

Tools

Open DOISci-Hub
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae