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Timing it Right’

Needs of African American adults with stroke and their caregivers across the care continuum

Bibliographic Data

ID12554282
AuthorsSuzanne Perea Burns (0000-0003-0409-1088, Texas Woman's University, corresponding author), Barabara J Lutz (University of North Carolina Wilmington), Gayenell S Magwood (0000-0002-2451-4888, WISSDOM Center, Medical University of South Carolina, Charleston, SC, USA)
Year2019
Volume27
Issue2
Pages420-434
Publication date2019-11-21
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueEthnicity and Health (JOURNAL)
Journal identifiersISSN: 1355-7858 • E-ISSN: 1465-3419
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/13557858.2019.1693512
PMID31752519
OpenAlexW2990028246
LanguageEN
Citations received3
References cited37

Objective: African Americans are disproportionately affected by stroke in the United States (US). The purpose of this study is to explore experiences, wants, and needs of African Americans with stroke and their family caregivers residing in the stroke belt across the care continuum using the 'Timing It Right' (TIR) framework as a conceptual guide. Design: We conducted a series of focus groups among 20 African Americans living with stroke and 19 family caregivers. Focus groups were audio-recorded and transcribed verbatim. For this secondary analysis, we coded qualitative data using the TIR framework. Results: Participants in this sample identified pre-stroke needs in addition to the TIR phases that span across the care continuum and into community living. We identified four important contextual factors and real-world conditions that operate in the background and influence the post-stroke needs of this specific population across the TIR framework: (1) religion, faith, and church, (2) healthcare delivery, (3) community, and (4) sentinel events. Conclusions : We propose a TIR model that expands upon the original TIR framework which includes factors important for consideration when developing and delivering community-based interventions among African Americans with stroke and family caregivers in the southeastern US

African american · Conceptual framework · Continuum of care · Environmental health · Focus group · Health care · Political science · Population · Psychological intervention · Qualitative research · Sociology · Stroke (engine · Dementia and Cognitive Impairment Research · Intergenerational Family Dynamics and Caregiving · Medicine · Nursing · Psychology · Stroke Rehabilitation and Recovery · Gerontology

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Unique citing works3
Citations per year1
Citation span2023 - 2024 (2)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 3

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