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Genetic Screening of Newborns in Malaysia

An Ethico-legal Prognosis

Bibliographic Data

ID12583554
AuthorsMajdah Zawawi (0000-0002-4635-3595, International Islamic University Malaysia, corresponding author), Ida Madieha Abdul Ghani Azmi (0000-0003-3124-0317, International Islamic University Malaysia)
Year2014
Volume28
Issue2
Pages135-149
Publication date2014-06-17
Open AccessNo
TypeARTICLE
VenueInternational Journal of Law Policy and the Family (JOURNAL)
Journal identifiersISSN: 1360-9939 • E-ISSN: 1464-3707
PublisherOxford University Press (OUP) (PUBLISHER)
DOI10.1093/lawfam/ebu007
OpenAlexW2014161295
LanguageEN
References cited2

Genetic screening of newborns is not a cure in itself, but it is an important tool for physicians to diagnose a genetic disease or disorder. It also provides hope for parents of children with these rare diseases for treatment or at least some advice as to how to help the children grow in a more comfortable environment. This article argues that any jurisdiction wishing to introduce a specific genetic screening programme which makes it compulsory for parents of newborn children to submit their children for genetic testing must address the issue of informed consent of the parents, the types of tests that would be carried out and the treatment of the genetic information that has been obtained. Malaysia is used as an example of how these factors might be reflected in the law

Alternative medicine · Biology · Disease · Family medicine · Genetic diagnosis · Genetic disorder · Genetic testing · Informed consent · Jurisdiction · Pathology · Political science · Ethics and Legal Issues in Pediatric Healthcare · Ethics in medical practice · Medicine · Patient Dignity and Privacy · Psychology · Genetics · Law · Pediatrics

Highly citedNo

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