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Constructing the (m)other

Dominant and contested narratives on mothering a child with Down syndrome

Bibliographic Data

ID12625535
AuthorsPriya Lalvani (0000-0003-1670-1867, Montclair State University, corresponding author)
Year2011
Volume21
Issue2
Pages276-293
Publication date2011-12-26
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueNarrative Inquiry (JOURNAL)
Journal identifiersISSN: 1387-6740 • E-ISSN: 1569-9935
PublisherJohn Benjamins Publishing Company (PUBLISHER • NL)
DOI10.1075/ni.21.2.06lal
OpenAlexW2138642605
LanguageEN
Citations received19
References cited7

This qualitative study explored the ways in which mothers of children with Down syndrome interpreted their experiences of motherhood. The narratives of 19 mothers were analyzed. The findings indicate that their identities as mothers were negotiated in the context of the sociocultural meaning of disability and dominant narratives on motherhood. In institutional and interpersonal discourses, they became positioned as other . Their narratives shed light on their resistance to otherness, their contextualized understanding of mothering a child with Down syndrome, and the ways in which they negotiated access to the constructed category of normative motherhood. The study suggests that a conceptual shift is needed in understanding the familial experience of raising a child with Down syndrome. Moving away from assumptions of negative outcomes for these families, professionals need to acknowledge the embeddedness of their experiences in sociocultural beliefs and practices that devalue children with disabilities

Context (archaeology · Developmental psychology · Embeddedness · Epistemology · Interpersonal communication · Linguistics · Meaning (existential · Narrative · Narrative inquiry · Normative · Psychotherapist · Qualitative research · Resistance (ecology · Social science · Sociocultural evolution · Sociology · Anthropology · Counseling, Therapy, and Family Dynamics · Disability Rights and Representation · Family and Disability Support Research · Gender Studies · Psychology · Social Psychology

  • Extreme Caregiving

    Lisa Freitag•Extreme Caregiving•2018

  • Hard Labor

    Lisa Freitag•Extreme Caregiving•2017

  • Down Syndrome as Pure Simulacrum

    Sharon Smith, Sharon Louise Smith et al.•Journal of Literary & Cultural…•2021

  • Mother-teacher-scholar-advocates

    Open Access•Elisabeth Lowenstein, Darolyn “lyn” Jones•Journal of Organizational…•2021

  • Giving Care a Platform

    Open Access•Mikayla Gordon Wexler, C Dole•Medicine Anthropology Theory•2022

  • Becoming, belonging, and the fear of everything Black

    Lydia Ocasio-Stoutenburg•Race Ethnicity and Education•2021

  • (Be)Longing

    David J Connor, Diane Berman•International Journal of…•2019

  • Parenting a child with an intellectual disability

    Open Access•Gail James, Duncan Dudley-Hicks et al.•Disability & Society•2024

  • The enforcement of normalcy in schools and the disablement of families

    Priya Lalvani•Disability & Society•2014

  • A test of faith? Attitudes of ultraorthodox Jewish parents of children with down syndrome toward prenatal testing

    Tamar Nov-Klaiman, A E Raz et al.•Disability & Society•2022

  • Prenatal Genetic Screening, Epistemic Justice, and Reproductive Autonomy

    Open Access•Amber Knight, Joshua Miller et al.•Hypatia•2021

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    Open Access•Susan L Gabel•Hypatia•2018

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    Open Access•Elizabeth Podnieks•The Journal of Popular Culture•2016

  • Acts of resistance

    Open Access•Siu-Wai Lit•International Social Work•2015

  • Motherhood in the Context of Normative Discourse

    Open Access•Susan L Gabel, Kathy Kotel•Journal of Medical Humanities•2018

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    Open Access•Lauren Clark, Heather E Canary et al.•Qualitative Health Research•2020

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  • Of Woman Born

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Unique citing works19
Citations per year1,58
Citation span2014 - 2024 (11)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 19

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