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The Man in the Mirror

Reflections on Dementia Caregiving in Lebanon

Bibliographic Data

ID12648780
AuthorsNayiri Baboudjian Bouchakjian (Lebanese American University, corresponding author)
Year2023
Volume20
Issue4
Pages703-712
Publication date2023-07-04
Open AccessNo
TypeARTICLE
VenueLife Writing (JOURNAL)
Journal identifiersISSN: 1448-4528 • E-ISSN: 1751-2964
PublisherRoutledge (PUBLISHER • GB)
DOI10.1080/14484528.2023.2228505
OpenAlexW4383228209
LanguageEN
References cited10

In this article, I study the different expressions of grief that I experienced while taking care of my Father who lived with Alzheimer’s for over a decade, in Beirut, Lebanon. As his primary caregiver, I was shocked by the reaction of the medical team who, at times, treated my Father as ‘invisible.’ Drawing on a parallel between Pokr Mher, an Armenian mythological figure, and my Father’s status locked in the house for years, I explore how alienation from friends and family affected him. I stress the caregiver’s significant and under-represented role, possible burnout, and withdrawal from society. In a country entrenched in corruption, and sinking in economic and political malaise, the Beirut Port Blast created an immense wave of collective grief, paralleled and even outweighed by the extracted grief of going through the Alzheimer’s arc. I shed light, too, on the importance of one’s mother tongue in dementia care. Discussing end-of-life matters in one’s own language may carry with it a finality that a second language masks. Finally, in seeking to bequeath meaning to my caregiving journey, I emphasise the role of life writing as a tool of remembering and focusing on the fullness of the forget-fullness journey

Art · Dementia · Disease · Disenfranchised grief · Grief · Literature · Meaning (existential · Mythology · Political science · Politics · Psychoanalysis · Psychotherapist · Sociology · Traumatic grief · Gender Studies · Grief, Bereavement, and Mental Health · Islamic Studies and History · Law · Medicine · Middle East Politics and Society · Psychology

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Highly citedNo

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