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Together in later life

How extra care housing can support couples affected by dementia

Bibliographic Data

ID12652395
AuthorsRebecca Oatley (0000-0003-0552-0198, Cardiff University School of Social Sciences, , Cardiff, corresponding author), Teresa June Atkinson (University of Worcester The Association for Dementia Studies, , Worcester)
Year2025
Volume29
Issue1
Pages43-55
Publication date2025-11-25
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueHousing Care and Support (JOURNAL)
Journal identifiersISSN: 1460-8790 • E-ISSN: 2042-8375
PublisherEmerald Publishing Limited (PUBLISHER • GB)
DOI10.1108/hcs-03-2025-0006
OpenAlexW7106530973
LanguageEN
References cited25

Purpose The purpose of this paper is to present insights into how extra care housing (ECH) can support couples, where at least one partner is living with dementia. ECH is a model of housing with flexible care and support that supports older people to live independently. Couples are enabled to continue to live together in a self-contained flat or apartment with additional support for either or both parties as required. Design/methodology/approach This paper reports on findings from a large study of living with dementia in ECH (DemECH) that involved qualitative interviews with ECH residents affected by dementia, ECH staff and adult social care professionals were conducted across eight ECH schemes in England. Findings Data offer insight into how ECH can support couples might navigate their relationship, maintain a sense of togetherness and adapt to the challenges posed by changing care and support needs and cognitive decline. Research limitations/implications The findings of this study are based on a small sample with limited diversity, which is not claimed to be representative. Participants were identified by gatekeepers at each research site, which may have presented some selection bias. Originality/value This paper provides novel insights into the living experiences of couples residing in ECH where at least one partner is living with dementia. Couples’ experiences in ECH have been little considered in research thus far

Apartment · Assisted living · Cognition · Dementia · Independent living · Qualitative research · Sample (material · Social support · Collaborative and Sustainable Housing Initiatives · Intergenerational Family Dynamics and Caregiving · Migration, Aging, and Tourism Studies

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Highly citedNo

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