How The Fault in Our Stars illuminates four themes of the Adolescent End of Life Narrative
Bibliographic Data
| ID | 12691980 |
|---|---|
| Authors | Anna Obergfell Kirkman (Legal Affairs, Eskenazi Health, Indianapolis, Indiana, USA, corresponding author), Jane A Hartsock (0000-0002-2359-7706, Indiana University Health), Alexia M Torke (0000-0001-9609-714X, Indiana University Health) |
| Year | 2018 |
| Volume | 45 |
| Issue | 3 |
| Pages | 240-246 |
| Publication date | 2018-05-26 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Medical Humanities (JOURNAL) |
| Journal identifiers | ISSN: 1468-215X • E-ISSN: 1473-4265 |
| Publisher | BMJ (PUBLISHER • GB) |
| DOI | 10.1136/medhum-2017-011400 |
| PMID | 29804093 |
| OpenAlex | W2804424112 |
| Language | EN |
| Citations received | 1 |
| References cited | 26 |
Adolescents who face life-limiting illness have unique developmental features and strong personal preferences around end of life (EOL) care. Understanding and documenting those preferences can be enhanced by practising narrative medicine. This paper aims to identify a new form of narrative, the Adolescent End of Life Narrative, and recognise four central themes. The Adolescent EOL Narrative can be observed in young adult fiction, The Fault in Our Stars , which elucidates the notion that terminally ill adolescents have authentic preferences about their life and death. Attaining narrative competence and appreciating the distinct perspective of the dying adolescent allows medical providers and parents to support the adolescent in achieving a good death. By thinking with the Adolescent EOL Narrative, adults can use Voicing my CHOiCES, an EOL planning guide designed for adolescents, to effectively capture the adolescent's preferences, and the adolescent can make use of this type of narrative to make sense of their lived experience
Competence (human resources · Developmental psychology · End-of-life care · Face (sociological concept · Limiting · Literature · Narrative · Narrative inquiry · Palliative care · Perspective (graphical · Social science · Sociology · Childhood Cancer Survivors' Quality of Life · Ethics and Legal Issues in Pediatric Healthcare · Family Support in Illness · Medicine · Nursing · Psychology · Social Psychology
Against Narrativity
Reading Literary Fiction Improves Theory of Mind
The impossibility of moral responsibility
Narrative Medicine
Narrative Identity
The Wounded Storyteller
Affirming the Decisions Adolescents Make about Life and Death
Culture and Adolescent Development
The Influence of Age, Health Literacy, and Affluence on Adolescents’ Capacity to Consent to Research
The limits of narrative
| Unique citing works | 1 |
|---|---|
| Citations per year | 0.17 |
| Citation span | 2020 - 2020 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |