Children’s Views on Long-Term Screening for Type 1 Diabetes

Bibliographic Data

ID12806787
AuthorsUlrica Swartling (Lund University, corresponding author), Gert Helgesson (0000-0002-0075-0165, Karolinska Institutet), J Ludvigsson (0000-0003-1695-5234, Linköping University), Margareta Hansson (0000-0002-0168-9968, Uppsala University), Anders Nordgren (0000-0003-0636-780X, Linköping University)
Year2014
Volume9
Issue4
Pages1-9
Publication date2014-08-11
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueJournal of Empirical Research on Human Research Ethics (JOURNAL)
Journal identifiersISSN: 1556-2646 • E-ISSN: 1556-2654
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/1556264614544456
PMID25747292
OpenAlexW2146925924
LanguageEN
Citations received1
References cited26

There are an increasing number of medical research studies involving children, including many long-term birth cohort studies. Involving children raises many issues, and little is known about children's own views. This study explored children's views (N = 5,851) on participation in a long-term screening study for type 1 diabetes. The results show that children 10 to 13 years of age have in general a positive attitude to pediatric research and emphasized trust in researchers. The children stressed the importance to receive information and to be involved in decisions. The children also reported feeling concerned about blood sampling and disease risk. Researchers involved in long-term pediatric research need to address these issues to promote involvement and decrease worry

Developmental psychology · Diabetes mellitus · Disease · Family medicine · Feeling · Pediatric research · Psychiatry · Term (time · Type 1 diabetes · Worry · Childhood Cancer Survivors' Quality of Life · Ethics and Legal Issues in Pediatric Healthcare · Medicine · Pharmaceutical studies and practices · Psychology · Social Psychology · Pediatrics

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