Commentary on “A Framework for Community and Stakeholder Engagement
Experiences From a Multicenter Study in Southern Africa”
Bibliographic Data
| ID | 12807288 |
|---|---|
| Authors | P A Newman (0000-0003-0444-5915, University of Toronto, corresponding author), C Slack (0000-0002-6608-0248, University of KwaZulu-Natal), Graham Lindegger (University of KwaZulu-Natal) |
| Year | 2018 |
| Volume | 13 |
| Issue | 4 |
| Pages | 333-337 |
| Publication date | 2018-09-19 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Empirical Research on Human Research Ethics (JOURNAL) |
| Journal identifiers | ISSN: 1556-2646 • E-ISSN: 1556-2654 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/1556264618783560 |
| PMID | 30229705 |
| OpenAlex | W2890556979 |
| Language | EN |
| References cited | 19 |
Community and stakeholder engagement (CSE) is increasingly acknowledged as foundational to global health research. This commentary builds on the multisite framework for CSE described in an eco-health study conducted in Southern Africa. We acknowledge the context-specific nature of some of the challenges for CSE and draw attention to significant issues and concerns that arose from our studies of CSE in the context of multisite HIV prevention trials in South Africa, India, and Canada: (a) Pretrial-historically based mistrust, identification of appropriate gatekeepers, and considering the breadth of community; (b) Trial implementation-impact of early trial cessations, appropriate community roles and responsibilities, and multifaceted stigma; and (c) Posttrial-supporting and sustaining CSE mechanisms independent of particular trials. Many of these challenges are exacerbated by widespread disparities in wealth and power between trial sponsors and participating communities, further supporting the central importance of sound CSE practices and infrastructures to advance ethical biomedical and public health research
Community engagement · Context (archaeology · Geography · Political science · Psychiatry · Public health · Public involvement · Public relations · Research ethics · Sociology · Stakeholder · Stakeholder engagement · Stigma (botany · Ethics in Clinical Research · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Nursing · Psychology
Grand Challenges in Global Health
‘It Looks Like You Just Want Them When Things Get Rough’
Civil society perspectives on negative biomedical HIV prevention trial results and implications for future trials
HIV vaccine acceptability and culturally appropriate dissemination among sexually diverse Aboriginal peoples in Canada
A Framework for Community and Stakeholder Engagement
I’m Positive, But I’m Negative
What Can IRBs Learn From CABs? A Qualitative Analysis of the Experiences of Recruitment and Training of Nonscientist Members on Research Review Boards
What Is Community? An Evidence-Based Definition for Participatory Public Health
Caveats and pitfalls associated with researching community engagement in the context of HIV vaccine trials
| Highly cited | No |
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