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Practical Incorporation of Stakeholder-Informed Ethics into Research Funding Decisions

Bibliographic Data

ID12809147
AuthorsMerton Lee (0000-0002-5066-699X, corresponding author), Nicole Brandt (0000-0003-2766-6120), Carmen Elena Salinas Reyes, Daniel Mansour, Katie Maslow, Catherine A Sarkisian (0000-0003-2768-2323)
Year2024
Volume18
Issue3
Pages389-396
Publication date2024-09-01
Open AccessNo
TypeARTICLE
VenueProgress in community health partnerships (JOURNAL)
Journal identifiersISSN: 1557-055X • E-ISSN: 1557-0541
PublisherProject MUSE (PUBLISHER • US)
DOI10.1353/cpr.2024.a937398
PMID39308383
OpenAlexW4402646453
LanguageEN

Research funding has been criticized as biased against novel initiatives and lacking diversity, which leads to further disparities. Patient and stakeholder engagement could support research that goes beyond traditional paradigms and increases diversity. However, best practices to engage stakeholders in research, including funding decisions, continue to be developed. We report on the implementation of stakeholder input in two federally funded initiatives, one that seeks to advance research reducing disparities, and the other seeks to advance deprescribing research. Overall, the review process includes stakeholders as decision makers and supports their efforts through group discussion and other activities. Reconciling stakeholder input that may differ from scientific peer review is a challenge within the decision for funding. Lessons learned include balancing stakeholder and scientific assessments and including guidance on stakeholder engagement to grant awardees

Engineering ethics · Political science · Public relations · Research ethics · Sociology · Stakeholder · Biomedical Ethics and Regulation · Engineering · Ethics in Clinical Research · Health and Medical Research Impacts · Psychology

Highly citedNo

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