Co-Creating Descriptors and a Definition for Person-Centred Coordinated Health Care
An Action Research Study
Bibliographic Data
| ID | 12833591 |
|---|---|
| Authors | Amanda Phelan (0000-0001-7225-2467, Trinity College Dublin, corresponding author), Daniela Rohde (0000-0001-8834-2539, University College Dublin), Mary Casey (0000-0003-3305-0074, University College Dublin), Gerard Fealy (0000-0002-0505-9808, University College Dublin), Patrick Felle (University College Dublin), Gabrielle O’Kelly (University College Dublin), Helen Lloyd (0000-0002-2916-1874, University of Plymouth), Áine Carroll (0000-0002-4383-8650, University College Dublin) |
| Year | 2021 |
| Volume | 21 |
| Issue | 1 |
| Pages | 11-11 |
| Publication date | 2021-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Integrated Care (JOURNAL) |
| Journal identifiers | ISSN: 1568-4156 • E-ISSN: 1568-4156 |
| Publisher | Ubiquity Press (PUBLISHER • GB) |
| DOI | 10.5334/ijic.5575 |
| PMID | 33716594 |
| OpenAlex | W3119933654 |
| Language | EN |
| Citations received | 3 |
| References cited | 28 |
The aim of this study was to co-create a definition and generic descriptors for person-centred coordinated care for Ireland generated from service users' narratives. An overarching action research approach was used to engage and empower people to tangibly impact health policy and practice. Through focus groups and a qualitative survey, primary data were collected from a national sample of health services users, caregivers and health care service users' representative groups. Thematic analysis was used to analyse the data. Three major themes were co-produced as essential care elements. These were: 'My experience of healthcare', 'Care that I am confident in' and 'My journey through healthcare'. Through an IPPOSI partner project steering group and their membership groups' contribution, these themes were further refined into a definition of person-centred coordinated care and nineteen related generic descriptors. Key findings demonstrate that within complex, fragmented healthcare systems, the subjective expectations of service users should be integrated into care delivery, with a scaffolding of services to meet service users' needs between care settings and disciplines and over time
Action (physics · Action research · Business · Focus group · Health care · Integrated care · Knowledge management · Political science · Public relations · Qualitative research · Service (business · Sociology · Thematic analysis · Chronic Disease Management Strategies · Computer Science · Healthcare innovation and challenges · Medicine · Mental Health and Patient Involvement · Nursing · Psychology · Marketing
The Quality of Care
The use of focus group discussion methodology
Decision aids for people facing health treatment or screening decisions
“Same same or different?” A review of reviews of person-centered and patient-centered care
Creating and facilitating change for Person‐Centred Coordinated Care (P3C)
How to practice person‐centred care
‘Talking the talk or walking the walk?’ A bibliometric review of the literature on public involvement in health research published between 1995 and 2009
Coordinated care
Rainbow of Chaos
Challenges in Achieving Collaboration in Clinical Practice
Participatory action research
Participatory action research
Using thematic analysis in psychology
Facilitating Empowerment and Self-Determination Through Participatory Action Research
| Unique citing works | 3 |
|---|---|
| Citations per year | 0,75 |
| Citation span | 2022 - 2025 (4) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 3 |