Parent‐to‐Child Transition in Managing Cystic Fibrosis

A Research Synthesis

Bibliographic Data

ID12927630
AuthorsJennifer Leeman (0000-0003-1135-8860, University of North Carolina at Chapel Hill, corresponding author), Margarete Sandelowski (University of North Carolina at Chapel Hill), Nancy L Havill (0000-0001-9937-5184, University of North Carolina at Chapel Hill), Kathleen A Knafl (0000-0003-2623-2515, University of North Carolina at Chapel Hill)
Year2015
Volume7
Issue2
Pages167-183
Publication date2015-06-01
Open AccessYes
TypeARTICLE
VenueJournal of Family Theory & Review (JOURNAL)
Journal identifiersISSN: 1756-2570 • E-ISSN: 1756-2589
PublisherWiley (PUBLISHER • GB)
DOI10.1111/jftr.12070
PMID26279680
PMCIDPMC4532343
OpenAlexW1552124799
LanguageEN
Citations received1
References cited36

Although parents and children must adhere to five primary treatments for cystic fibrosis (CF), and their roles transition over time, the scope of CF studies often has been limited to one treatment regimen or to children within a specified age range. The purpose of this mixed research synthesis study is to integrate findings from qualitative and quantitative studies addressing the transition of CF management from parent to child, as well as factors related to adherence across treatments and over time. An existing grounded theory was used as a framework to synthesize findings in 17 reports from 16 studies. The results confirm the theory and posit three additional factors that may influence parent-to-child transition of care management

Cystic fibrosis · Developmental psychology · Grounded theory · Qualitative research · Regimen · Scope (computer science · Sociology · Transition (genetics · Adolescent and Pediatric Healthcare · Chemistry · Computer Science · Cystic Fibrosis Research Advances · Family and Disability Support Research · Medicine · Psychology · Internal Medicine

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