Sickle Cell Disease in Bahia, Brazil
The Social Production of Health Policies and Institutional Neglect
Bibliographic Data
| ID | 13024317 |
|---|---|
| Authors | Clarice Santos Mota (0000-0002-5168-7004, Universidade Federal da Bahia), Leny Alves Bomfim Trad (0000-0002-8762-4320, Universidade Federal da Bahia), Lisa Dikomitis (0000-0002-5752-3270, Canterbury Christ Church University, corresponding author) |
| Year | 2022 |
| Volume | 12 |
| Issue | 4 |
| Pages | 108-108 |
| Publication date | 2022-07-18 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Societies (JOURNAL) |
| Journal identifiers | ISSN: 2075-4698 • E-ISSN: 2075-4698 |
| Publisher | MDPI AG (PUBLISHER • IT) |
| DOI | 10.3390/soc12040108 |
| OpenAlex | W4285802008 |
| Language | EN |
| Citations received | 5 |
| References cited | 45 |
A disease is considered neglected when it is not given due priority in health policies despite the social relevance of that disease, either in terms of the number of individuals affected by it or its morbidity or mortality. Although the causes are structural, neglect in health does not occur in a vacuum. In this paper, we explore how sickle cell disease (SCD) is constructed and neglected in Brazil, based on insights from our long-term participatory qualitative research in the state of Bahia. We present five overarching themes relevant to the social production of SCD, and associated health policies in Brazil: (1) The achievements and setbacks to overcome neglect in SCD, (2) Continuity of comprehensive SCD care; (3) Social movements of people with SCD; (4) Biocultural citizenship; and (5) Academic advocacy. We conclude that it is insufficient to merely recognize the health inequities that differentiate white and black populations in Brazil; racism must be understood as both a producer and a reproducer of this process of neglect. We conclude with a set of recommendations for the main SCD stakeholder groups committed to improving the lives of people living with SCD
Criminology · Development economics · Disease · Economic growth · Economics · Health care · Neglect · Pathology · Political science · Psychiatry · Sociology · Blood donation and transfusion practices · Hemoglobinopathies and Related Disorders · Iron Metabolism and Disorders · Medicine
The Brazilian health system
A problemática do financiamento da saúde pública brasileira
A participação dos conviventes com a doença falciforme na atenção à saúde
Screening for Structural Hemoglobin Variants in Bahia, Brazil
Ebola and the production of neglect in global health
Legitimate suffering
Uma análise crítica da abordagem dos Determinantes Sociais da Saúde a partir da medicina social e saúde coletiva latino-americana
Políticas de saúde no Brasil nos anos 2000
Inovação em saúde e doenças negligenciadas
A Constituição Cidadã e os 25 anos do Sistema Único de Saúde (SUS)
We black women have to kill a lion everyday
Resignifying the sickle cell gene
Biocultural citizenship and embodying exceptionalism
Pesquisa-ação e educação
"You have to find a caring man, like your father!" gendering sickle cell and refashioning women's moral boundaries in Sierra Leone
Social disparities producing health inequities and shaping sickle cell disorder in Brazil
Inherited blood disorders, genetic risk and global public health
| Citations per year | 1.25 |
|---|---|
| Citation span | 2022 - 2025 (4) |
| Highly cited | No |