Agencies Displayed by Patients, Medical Teams, and Caregivers at the End of Life from the Perspectives of Family Members – A Qualitative Study
Bibliographic Data
| ID | 13628249 |
|---|---|
| Authors | Yoel Tawil (The Gertner Institute for Epidemiology and Health Policy Research, corresponding author), Moran Bodas (0000-0002-6182-6362, The Gertner Institute for Epidemiology and Health Policy Research, corresponding author), Adir Shaulov (0000-0002-9620-781X, Hadassah Medical Center and Faculty of Medicine), Arnona Ziv (0000-0003-1147-8686, The Gertner Institute for Epidemiology and Health Policy Research), Gustave Kaplan (0000-0001-9341-1332, The Gertner Institute for Epidemiology and Health Policy Research), Baruch Velan (0000-0002-2725-3249, The Gertner Institute for Epidemiology and Health Policy Research) |
| Year | 2023 |
| Volume | 91 |
| Issue | 4 |
| Pages | 1890-1908 |
| Publication date | 2023-03-29 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | OMEGA - Journal of Death and Dying (JOURNAL) |
| Journal identifiers | ISSN: 0030-2228 • E-ISSN: 1541-3764 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/00302228231166736 |
| PMID | 36989510 |
| OpenAlex | W4361282555 |
| Language | EN |
| References cited | 31 |
Background: End-of-life (EoL) Care is challenging for terminally-ill patients and their caregivers. This research is aimed to examine the relational agencies of the patients, the caregivers, and the medical teams in the context of EoL care, with a particular emphasis on the caregivers. Methods: This study is based on the qualitative analysis of interviews with 12 individuals who were closely supported a loved one to their death from a terminal illness. Results: Information collected revealed several agency-related themes. Family caregivers are significant entities in managing the 'case' of a seriously ill individual. At the final or more advanced stages of the EoL process, caregivers gradually shift from a supportive role to being active agents, but not always backed by the necessary experience, knowledge, or the requisite emotional resilience. Conclusions: Based on recognizing their agentic proactivity, a clear and elaborate articulation of the family caregivers' roles is needed
End-of-life care · Family caregivers · Family medicine · Medical education · Palliative care · Qualitative research · Social science · Sociology · Ethics in medical practice · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology · Gerontology
Values at the End of Life
The effects of advance care planning on end-of-life care
The Theory, Practice, and Evaluation of the Phenomenological Method as a Qualitative Research Procedure
The Two Faces of Familism
Planning End-of-Life Care for Patients with Dementia
Family Caregiver’s Depression, Confidence, Satisfaction, and Burden Regarding End-of-Life Home Care for People With End-Stage Dementia
End-of-Life Concerns and Care Preferences
Rethinking the Family in Israel
The Spousal Covenant (Brit Hazugiut), or the Covenant with the Status Quo
Agency and structure
Social Investment’ or Back to ‘Familism
Stability of elderly persons' expressed preferences regarding the use of life-sustaining treatments
| Citation velocity | historical |
|---|---|
| Highly cited | No |