Has Anyone Been There Now?”
An Interview Study on the Support Experiences and Unmet Needs of Informal Long-Distance Caregivers for Patients at the End of Life
Bibliographic Data
| ID | 13628412 |
|---|---|
| Authors | Franziska A Herbst (0000-0003-2602-9277, Medizinische Hochschule Hannover, corresponding author), Stephanie Stiel (0000-0002-5963-2526, Medizinische Hochschule Hannover) |
| Year | 2024 |
| Volume | 93 |
| Issue | 1 |
| Pages | 615-635 |
| Publication date | 2024-03-29 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | OMEGA - Journal of Death and Dying (JOURNAL) |
| Journal identifiers | ISSN: 0030-2228 • E-ISSN: 1541-3764 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/00302228241243110 |
| PMID | 38552206 |
| OpenAlex | W4393318924 |
| Language | EN |
| References cited | 33 |
In the German context, research is lacking on the support experiences and unmet needs of informal caregivers in end-of-life situations who are geographically distanced from their ill relatives. The current study aimed at deepening our understanding of the specific end-of-life support experiences and needs of informal long-distance caregivers. The study employed an explorative design, applying qualitative interviews. Thirty-three long-distance family caregivers participated in the study (December 2021-October 2022). The results showed that long-distance caregivers relied on close exchange and cooperation with local family and non-kin caregivers. They also expressed the wish to be considered more proactively by professional caregivers, with respect to their specific geographic situations. They further recommended that local care networks be built to support patients. Hypotheses were deduced from long-distance caregivers' recommendations for support interventions. The results may be useful for the development of an online information resource for long-distance caregivers in end-of-life situations
Context (archaeology · End-of-life care · Family caregivers · Geography · German · Palliative care · Psychological intervention · Qualitative research · Resource (disambiguation · Social support · Sociology · Computer Science · Family Caregiving in Mental Illness · Family Support in Illness · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology · Social Psychology · Gerontology
Grounded theory in practice
Adopting a constructivist approach to grounded theory
Consolidated criteria for reporting qualitative research (Coreq)
Close but Not Close Enough
Developing a Framework for the Support of Informal Caregivers
Education and Support Programs for Caregivers
Families Caring for an Aging America
Coping with dying and deaths at home
Barriers, facilitators, and motives to provide distance care, and the consequences for distance caregivers
Respect and reciprocity
The mobilities of care in later life
Caring for a Parent with Lung Cancer
How Many Interviews Are Enough
| Highly cited | No |
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