I Do Not Think She Will Understand, This is Not a Situation for a Girl Like Her

” Disenfranchised Grief Among Adults with Intellectual and Developmental Disabilities in the Ultra-orthodox Jewish Society

Dados Bibliográficos

ID13628490
AutoresAlon Zamir (0000-0001-6862-3528, The Minerva Center on Intersectionality in Aging (MCIA), University of Haifa, Haifa, Israel, autor correspondente), Tova Band-Winterstein (The Minerva Center on Intersectionality in Aging (MCIA), University of Haifa, Haifa, Israel), Tova Band‐Winterstein (0000-0002-6381-3661, University of Haifa)
Ano2022
Volume91
Fascículo2
Páginas728-746
Data de publicação2022-11-25
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoOMEGA - Journal of Death and Dying (JOURNAL)
Identificadores do periódicoISSN: 0030-2228 • E-ISSN: 1541-3764
EditoraSAGE Publishing (PUBLISHER • US)
DOI10.1177/00302228221141941
PMID36427817
OpenAlexW4310051781
IdiomaEN
Citações recebidas1
Referências citadas27

This article examines the experience of aging ultra-Orthodox families alongside a person with intellectual and developmental disabilities (IDD) in relation to parents' illness and death, followed by grief. In-depth interviews were conducted with 14 family units. Each family unit included the person with IDD, a parent, and a sibling-a total of 43 participants. Three main themes emerged: A. The difficulty in confronting illness and dying of parents alongside a family member with IDD in an Ultra-Orthodox Context. B. Exclusion of the person with IDD from parents' memorial events. C. Religious ceremonies as a strategy for coping with mourning among persons with IDD. The discussion focuses on the concept of disenfranchised grief in a religious context and its impact on the family support system. Culturally sensitive therapeutic recommendations are made for professionals working with older ultra-Orthodox Jewish families alongside a person with IDD in the context of the subject

Context (archaeology · Coping (psychology · Developmental psychology · Disenfranchised grief · Girl · Grief · Intellectual disability · Judaism · Psychiatry · Psychotherapist · Sibling · Family and Disability Support Research · Family Support in Illness · Grief, Bereavement, and Mental Health · Psychology