She Can’t Support Me Because She’s so Old’
A Mixed-Methods Study of Support Experiences and Needs in Adult Child–Parent Dyads at the End of Life
Bibliographic Data
| ID | 13628688 |
|---|---|
| Authors | Franziska A Herbst (0000-0003-2602-9277, Hannover Medical School, Institute for General Practice, Hanover, Germany, corresponding author), Laura Gawinski (0000-0003-2843-2158, Hannover Medical School, Institute for General Practice, Hanover, Germany), Nils Schneider (Hannover Medical School, Institute for General Practice, Hanover, Germany), Stephanie Stiel (0000-0002-5963-2526, Hannover Medical School, Institute for General Practice, Hanover, Germany) |
| Year | 2021 |
| Volume | 86 |
| Issue | 4 |
| Pages | 1371-1387 |
| Publication date | 2021-04-14 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | OMEGA - Journal of Death and Dying (JOURNAL) |
| Journal identifiers | ISSN: 0030-2228 • E-ISSN: 1541-3764 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/00302228211008748 |
| PMID | 33853447 |
| OpenAlex | W3153502997 |
| Language | EN |
| References cited | 39 |
Little is known about support experiences and needs in the dyads of (1) terminally ill adult children and their parent caregivers and (2) terminally ill parents and their adult child caregivers. The current study aimed at investigating the experiences and needs of adult children and parents in end of life situations regarding their provision and receipt of support. The study employed a convergent parallel mixed-methods design, combining explorative qualitative interviews with the quantitative self-report Berlin Social Support Scales. Sixty-five patients (dyad 1: 19; dyad 2: 46) and 42 family caregivers (dyad 1: 13; dyad 2: 29) participated in the study (02/2018-11/2019). Results show that ill adult children felt less (well) supported than ill parents. Parent caregivers were often limited in the support they could provide, due to their age and health conditions. Hypotheses were deduced from patients' and family caregivers' notions to inform dyad-specific recommendations for support interventions
Developmental psychology · Dyad · Qualitative research · Receipt · Social support · Clinical Psychology · Family Support in Illness · Grief, Bereavement, and Mental Health · Palliative Care and End-of-Life Issues · Psychology · Social Psychology
Factors influencing death at home in terminally ill patients with cancer
Soziale Unterstützung bei der Krankheitsbewältigung
The Quality of Mixed Methods Studies in Health Services Research
Family caregiver burden
Consolidated criteria for reporting qualitative research (Coreq)
Grounded Theory in Practice
A Qualitative Study of the Experiences of Parents With an Adult Child Who Has a Severe Disease
The Blessings and the Curses of Filial Piety on Dignity at the End of Life
Family Caregivers, Their Needs, and Home-based Palliative Cancer Services
Caring for Aged Parents
When the Caregiver Needs Care
Filial Reconstruction
Mixing methods in a qualitatively driven way
| Citation velocity | historical |
|---|---|
| Highly cited | No |