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Exploring the Bereavement Experiences of Older Women with Intellectual Disabilities in Long-Term Residential Care

A Staff Perspective

Bibliographic Data

ID13628821
AuthorsNancy Morgan (Irish Hospice Foundation, Dublin, Ireland, corresponding author), John McEvoy (Dundalk Institute of Technology)
Year2014
Volume69
Issue2
Pages117-135
Publication date2014-09-16
Open AccessYes
TypeARTICLE
VenueOMEGA - Journal of Death and Dying (JOURNAL)
Journal identifiersISSN: 0030-2228 • E-ISSN: 1541-3764
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.2190/om.69.2.b
PMID25223309
OpenAlexW2320523283
LanguageEN
Citations received3
References cited55

This study explores the impact of bereavement on a group of older women with intellectual disabilities who have lived in a congregated residential setting for most of their lives. Using Interpretative Phenomenological Analysis, staffs' experiences of supporting individuals with varying degrees of intellectual disabilities through grief are examined. Data analysis revealed five super-ordinate themes. The findings indicate that recognizing grief in this group is complex, and secondary loss frequent. Carers and relatives may overprotect and disenfranchise their grief which is often expressed through changes in behavior and there may be a time lag before these expressions of grief are noticed. Religious practice and rituals were found to be helpful in coping and adjusting to loss. Carers are important advocates for supporting service users who are grieving, thus information on how grief is processed in elderly individuals with intellectual disabilities has implications for training and educating staff in supporting vulnerable adults

Coping (psychology · Developmental psychology · Disenfranchised grief · Grief · Intellectual disability · Interpretative phenomenological analysis · Perspective (graphical · Psychiatry · Psychotherapist · Qualitative research · Sociology · Traumatic grief · Clinical Psychology · Family and Disability Support Research · Grief, Bereavement, and Mental Health · Homelessness and Social Issues · Psychology

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    Open Access•Sara Wnuczek•Zbliżenia Cywilizacyjne•2025

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  • Qualitative research

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  • Death and Grief as Experienced by Adults with Developmental Disabilities

    Open Access•John H Hoover, Marc A Markell et al.•OMEGA - Journal of Death and Dying•2005

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    Open Access•Danai Papadatou•OMEGA - Journal of Death and Dying•2000

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Citations per year1
Citation span2023 - 2025 (3)
Highly citedNo

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