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Difficulties Experienced by Turkish Parents With Children in Pediatric Palliative Care

An Exploratory Qualitative Study

Bibliographic Data

ID13628977
AuthorsTülay Kuzlu Ayyıldız (0000-0002-8924-5957, Zonguldak Bülent Ecevit University), Tulay Kuzlu Ayyildiz (Faculty of Health Sciences, Department of Pediatric Nursing, Zonguldak Bülent Ecevit University, Zonguldak, Turkey), Aylin Kurt (0000-0002-5521-0828, Faculty of Health Sciences, Department of Pediatric Nursing, Bartın University, Bartın, Turkey, corresponding author), Aysel Topan (0000-0002-5883-0045, Faculty of Health Sciences, Department of Pediatric Nursing, Zonguldak Bülent Ecevit University, Zonguldak, Turkey), Hülya Kulakçı Altıntaş (0000-0003-4191-1559, Faculty of Health Sciences, Department of Pediatric Nursing, Zonguldak Bülent Ecevit University, Zonguldak, Turkey), Funda Veren (0000-0002-4760-6486, Faculty of Health Sciences, Department of Pediatric Nursing, Zonguldak Bülent Ecevit University, Zonguldak, Turkey), Fadime Üstüner Top (0000-0002-7341-5704, Faculty of Health Sciences, Pediatric Nursing, Giresun University, Giresun, Turkey)
Year2022
Volume90
Issue1
Pages59-72
Publication date2022-04-26
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueOMEGA - Journal of Death and Dying (JOURNAL)
Journal identifiersISSN: 0030-2228 • E-ISSN: 1541-3764
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/00302228221097291
PMID35471123
OpenAlexW4224948127
LanguageEN
References cited18

We aimed to identify the difficulties of the parents of pediatric palliative care patients and how they cope with these problems in this qualitative study in Turkey. This study was carried out with 20 parents by in-depth interviews. Content analysis was used for data analysis. Four themes were identified: The problems in the process of acceptance, the difficulties of being at the hospital, the expectations from the health staff, the coping strategies. The families had difficulties in coping with the end-of-life of their children. Future researches may focus on the effectiveness of family-centered care and the experience of parents with its implementation. The findings suggest that social support resources and coping strategies can play an important role in the acceptance of the child's disease process and maintenance of palliative care effectively

Content analysis · Coping (psychology · Exploratory research · Health care · Palliative care · Qualitative research · Turkish · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Family and Patient Care in Intensive Care Units · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology

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Citation velocityhistorical
Highly citedNo

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